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Why Pulmonary Hypertension Patients Are Often Invisible Patients

An “invisible illness” is a term used for any disease or condition which is not overtly obvious simply by looking at a person. MORE: 14 invisible illnesses you may not be aware of Most people with pulmonary hypertension (PH) would be considered an “invisible patient,” meaning they’re considered healthy and able-bodied because they don’t…

How Singing Can Improve Your Breathing

You’re probably thinking…singing? really? But according to the British Lung Foundation, recent studies have been focusing on how our bodies respond to music and how they can use it to treat lung diseases. MORE: Six ways to help you take care of your lungs Researchers have found that there are five major benefits of singing: 1.

3 Travel Considerations If You Have a Lung Disease

During the warmer weather, many of us will be thinking about vacations and traveling. While traveling with a lung disease does require some careful consideration, having a lung disease doesn’t mean that you have to be confined to the house. The British Lung Foundation has some advice for…

How Oxygen Therapy Helps With Pulmonary Hypertension

If breathing becomes too labored for a pulmonary hypertension patient and the level of oxygen in their blood becomes too low, they may be advised to begin oxygen therapy. MORE: Pulmonary hypertension 101: causes, symptoms, diagnosis and treatment Doctors can prescribe oxygen therapy for when the patient most needs it, usually during exercise…

11 Tips to Make Sleeping Better With Pulmonary Hypertension

According to Pulmonary Hypertension Association, everyone benefits from a good night’s sleep, but it’s essential for those with PH. To help you get the rest you deserve, here are 11 tips to help you sleep better with pulmonary hypertension (source: Pulmonary Hypertension Association): 1. Be regular: To avoid an irregular sleeping…

Tips for Talking to Your Doctor

This Macmillan Cancer Support video shares some tips on how to get the best out of your doctor’s appointments and hospital visits. MORE: Singing for Lung Health: How Singing Can Improve Your Breathing Dr. Davina Deniszczyc explains that before you meet with your doctor it’s a good idea to…

5 Benefits of Cannabis Tea for Chronic Illnesses

Medical marijuana is gaining popularity as a complementary medicine to help with many symptoms associated with chronic illnesses. While many people are curious about how marijuana (or cannabis) may help improve their symptoms, they are also reluctant to smoke the substance. However, there are ways that medical marijuana can be administered, including…

9 Tips for Exercising Safely With Pulmonary Hypertension

Pulmonary hypertension (PH) is a condition often misdiagnosed and with a very short lifespan if not treated in time. After getting an accurate diagnosis, it’s time to adapt to your new PH life and routine. Being such a serious condition, it can be scary to think about fitness while living with a…


A Conversation With Rare Disease Advocates