Counting My Steps Saved My Mental Health
Lots of people count their steps using a Fitbit device or their phone, but for me it has been a total lifeline. Being less active during lockdown made me worry…
Chronically Uncool — Ellie Bird
Ellie is a cat lover who lives and works in Cambridge, UK. She was diagnosed with pulmonary hypertension in 2017 at age 22, having just graduated university with an English literature degree. Now she works in higher education and dedicates her spare time to raising awareness about PH, reading books, singing and going for walks in the countryside (when not too breathless!). She also, in stereotypically English fashion, drinks a lot of tea — preferably with a slice of cake!
Featured Post
Navigating Summer Fun With a Chronic Illness
Summer is in full swing here in the U.K. Many are jetting off on holiday, and thousands flocked to the recent Glastonbury Festival. I’ve always loved summer, music festivals, heat, and travel.
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It’s Not ‘Back to Normal’ for Those With Chronic Illnesses
The world is re-opening. People are returning to bars, restaurants, and shops. They’re reuniting with loved ones and friends. I’m terrified. I’ve been locked down for over three months, but…
I’m Not ‘Lazy,’ I’m Sick
One of the hardest parts of having chronic health problems is the guilt. Many people struggling with complex conditions are branded “lazy.” And sometimes we even brand ourselves. Before I…
It’s Important to Be Your Own Health Advocate
Before I got sick I thought doctors knew everything. I thought doctors would know exactly what to do if I was ever unwell, and that I could just mindlessly follow their advice.
How COVID-19 Is Shining a Light on Ableism
Society doesn’t make it easy for people with disabilities and health conditions, including in the workplace. Historically, people with disabilities have struggled to hold down jobs. People with…
Juggling Health Admin and a Full-time Job
Sometimes I feel like having a health condition is a full-time job. I also have a “real” full-time job. Before I was diagnosed with pulmonary hypertension…
What People Should Know About Pulmonary Hypertension
Since I was diagnosed with pulmonary hypertension (PH) in 2017, I have struggled with people in my life who don’t understand what my illness is or how it…
Finding Love with a Chronic Illness
I’ve written in previous columns about the difficulties I’ve experienced while navigating romantic relationships with a chronic illness. This week, I wanted to write positively about finding…
Balancing Positivity and Realism When Facing Chronic Illness
One thing we hear a lot about while living with a serious chronic illness is the importance of staying positive. But what does that mean? The “importance of positivity” is…
Dealing with the Fear of Losing Independence
One of the hardest things about the diagnosis of a progressive illness is grappling with how your disease will affect your future independence. It can be scary and painful to…
Coping with Skipped Doctors’ Appointments During COVID-19 Lockdown
The COVID-19 pandemic is a stressful time for everyone, but it can be particularly stressful for those trying to manage long-term medical conditions. Many people with serious health problems are seeing their…
I’m Changing How I Respond to Family Concerns About My Health
When living with significant health problems, one must balance not only personal worries, but also those of family members and friends. This can be a lot to handle. One of…
