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Hello All, I had to go through 2 Pulmonolgists before I found the right team and with a RHCath was diagnosed with PAH. I also had Raynauds by a Rhumotologist who specializes in autoimmune diseases. I was diagnosed with limited Sclaraderma. Working with these two and their team learned that my PH was caused by Sclaraderma and as it turned out the Pulmonolgist’s special interest is autoimmune diseases. My hands and feet do get very cold then hot and my hands do swell up that it is difficult to close my fist. I do have battery heated gloves and often need to put my hands in warm water. It comes and goes. I have been able to deal with the Raynauds without medication so far. As my Rhumotologist just told me on my last visit, why put poison in your system when you are able to tolerate for now. So much is connected that I feel it is so critical to have a good team working with you.
Good luck on your appointments Cathleen and Gamma and Jen, I hope you can get your appointment with the Rhumotologist this Spring – right now, you probably have enough on your plate.
Be well. Be safe everyone