So sad to hear of Randolph’s passing. His contributions to this forum were and still are inspirational. I went back to read some of his insights, updates and thoutful encouraging messages to others struggling.

Thank you Randolph you are in our hearts always.

Is there an app specifically geared toward pulmonary hypertension patients? The answer is, yes!

According to this article, Phaware debuts Heart Works app to empower the global PH community, Global advocacy group Phaware has launched a new app, called Heart Works – phaware, to provide a centralized hub for education, health tracking, and community…

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@puddy68 It’s been quite a while. I was just thinking of you and wondering how you are doing. We are here when you need support or just want to share what is going on in your life.

Thank you for sharing this, Cullen!

It troubles me that people don’t understand what is happening to them, and why. I will be writing more on this subject!

Thank you for your appreciation of the column. It was also shared on the Pulmonary Hypertension News Knowledge Sharing Platform.

I am so happy I wrote it and feel like I need to write more about PH and how it affects us. I can break that up some and just talk about one thing at a time, maybe task(s) at a time. I’m not sure, but my wheels…

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Do you remember the joy of finding a handwritten letter or a card in your mailbox? When was the last time you provided someone with this random act of kindness, taking the time to write and mail someone a letter? This old school form of communication has therapeutic benefits for both the sender and the receiver that are more meaningful…

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I am very sad to inform you that Randolph Reynolds passed away on January 25, 2025, from a fall and a broken hip. Here is a link to his obituary.

@Randolph Reynolds was active on the forums, and I will miss his updates. I interviewed him a few years ago. Here is the column if you would like to read it.

What Do a Jet Fighter and a PAH Fighter Have in Common?

Thank you for this important topic, @cullen, and for sharing this excellent column by @JoliefromThePHlip-side

The PH Assoication used to offer free PH Information business cards to keep in your wallet to handout when people asked about PH. It offered basic bullet points about the disease. I don’t see it on their website anymore. Does anyone…

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Have you struggled to explain pulmonary hypertension to others? It can at times feel as complicated as living with the disease.

PH News columnist, Jolie Lizana, shares a “quick explainer” in her column, “how to explain the complexities of pulmonary hypertension to others”.

I received a heart and double lung transplant in 2014. Lizana… Read more

Thank you, @jen-cueva for encouraging random acts of kindness. You have always set a good example by practicing this often. Yes, kindness is good for your health and contagious! Help spread random acts of kindness!

This week is Random Acts of Kindness Week, and it’s the perfect time to make that a reality. It doesn’t take a grand gesture; a simple smile, a thoughtful text, or a genuine compliment can completely change someone’s day.

Plus, did you know that being kind is actually good for you? The Mayo Clinic states that acts of kindness can have a…

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@Tracey We haven’t heard from you in a long time. How are you doing? Were you able to have the surgery, and if so, has it helped? I’m just worried about you and hope you are doing ok.

How do you deal with bad days on top of PH trauma?

We all have bad days that aren’t necessarily PH-related. It could just be a lose your keys, spill your coffee, and get every red light on your way to wherever you are going, kind of bad day. These bumps in the road can feel rough when you are walking the PH path.

Patrick Moeschen, Muscular…

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Hi everyone,

I’m the newest columnist on PHNews. I find myself writing about the grief of loss of identity. I lost the person I once was due to PH and heart failure. I often feel as though I’m not enough, like I’m half the person I used to be.

Although I’m healthier than I have been in recent years, as far as my PH and heart are concerned.…

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@Rivegauche610 Congratulations on the Winrevair approval! I would say good things come to those who wait, except you shouldn’t have to wait when it comes to your health. Since PH can affect the heart as much as it does the lungs, I find beautiful symbolism in the approval happening the day before Valentine’s Day!

Thank you for sharing your…

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About one year after I started this thread – when Winrevair/Sotatercept was still “new” and the VA still afraid of its newness – I wasn’t approved. Today, February 13, I was approved for Winrevair. I will begin injecting myself with it soon after an Accredo nurse comes to my house to “show me how.”

I take Yutrepia 53 mcg q.i.d, Ambrisentan 5…

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You have to careful of what you wish for … especially when calling your dog … “Cloud COME!” and they do, full run with their buddy dog another Retriever and run right through you!! Tag you’re it! For sure! Thank 😊 you for making me smile.

This forum is a healing place for patients and caregivers equally. It is a safe pace to let it all…

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What has been your greatest health challenge while navigating winter weather?

Extreme cold can knock the wind out of a healthy person and knock a PH patient into the hospital. Bad weather might hinder a PHer’s ability to safely make their way to appointments and/or a pharmacy to pick up prescriptions. Symptoms and side effects such as shortness…

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@meghan-nevada Congratulations and thank you for sharing because it offers encouragement for others! I would love to interview and share your positive attitude with others in my column sometime.

@Terese Tuohey Your prayers mean so much to me! Thank you! I hope your dad’s hospice experience was the same as my dad’s. They took such excellent care of him and were compassionate to his family and friends. His passing was peaceful, and knowing that helps me grieve.

@Terese Tuohey Thank you for your kind condolences! Dad went into hospice on Christmas Eve and passed on New Year’s Eve. It’s never a good time to lose a loved one, but it happening during the holiday season is really rough. However, this has always been Dad’s favorite time of year, and I think that will help me with my grief in the future.…

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@jen-cueva Talking with you was so healing. I enjoyed sharing the similarities in how we remember our dads. Mom and I continue to watch at least one Western before bed every night. I believe it is a routine that will remain for a long time.

You know my friend, Janet…her dad was a big John Wayne fan and she used to make him casseroles and…

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@carol-volckmann You word things in a way that always makes me feel better. I appreciate you remembering Brian and how I now have two amazing spirits watching over me, my mom, and my sons. The PH forums are as much a place of healing for me as I hope they are for all our members.

@carol-volckmann I am catching up and just read about your face plant! The dogs said, “Tag, you’re it,” and were probably disappointed when you didn’t run after them! In all seriousness, ouch! Thank God you didn’t break anything, but pain is pain, and I’m sure you were really hurting! Are you feeling any better?

Hello, my Jen! I appreciate your support and encouragement! I’ll definitely share with everyone when I’m ready for the first meeting. I guess I didn’t need much encouragement. LOL I’m going to do it! More info to come…

Lots of love, my dear Jen!🌹❤

It’s great to hear that you’ve found comfort and friendship through online resources. Thanks for the share and the support! ❤

Thank you dear sweet friend. @jen-cueva you always seem to know just what will warm my heart and put a smile on my face 😊.<div>

It is now 3 weeks and my knee is still not better so tomorrow I see the Orthopedic 😳🦴 Maybe I am just being too impatient 🙃.

I have not heard from you Jen to how you are doing and all the challenges you face every…

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Hi @Karen Endelman ,I’m so glad to hear you’re finding success with Tyvaso. I can only imagine how wonderful that must feel after the many ups and downs you’ve experienced since your diagnosis. It can be a long journey with a lot of trial and error to find the right treatment, and I’m so happy it sounds like you’ve found something that is…

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OMG, what an incredible update , @meghan-nevada ! I remember talking with you because you are in the Houston area, right? I can’t believe it’s been 5 years! ❣

I’m so excited and celebrating with you how far you’ve come since your diagnosis! Thank you for sharing your uplifting post! I know by you sharing your story, others will find hope…

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As we move further into the new year, we wanted to pause and check in with you. The weeks can fly by so quickly, especially when appointments, tests, and everyday life with PH start stacking up.

Do you have any upcoming appointments, tests, or procedures where you could use a little extra support or encouragement from the community? Or… Read more

Hi @JoliefromThePHlip-side , How are you doing, my dear PHriend? I truly believe an online support group would attract many participants. We have hosted a few PH News Zoom calls in the past, and it was heartwarming to finally see the faces of the PHriends and PHamily we connect with so often!

Once you have everything set up, please return and…

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Oh no, my sweet friend, @carol-volckmann ! I am so sorry to hear about the accident when Cloud and his friend were playing. Thank God, you were injured worse than you are with your increased bleeding episodes recently! I bet you are still sore from that mishap!

Sending you extra gentle hugs, love, and prayers that you can fully recover from…

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Hello sweet friend, hope this note finds you doing well and stable. Thank you for reaching out Jen, it means so much.

I am doing pretty well except for a couple of hospital stays with more bleeds, but am okay right now except for …

Cloud and his black Lab best friend playing and running and chasing and both came running at hit me full on at…

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Dear sweet Colleen, I am so sorry to hear you lost your dad. I read his obituary – what an amazing life your dad had. All the lives he touched, his gentle strength, his love for his family and friends and what an incredible positive influence he had (still has) on your life. Two great men, Brian and your dad will always hold a special spot…

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Hey @Colleen-Steele , iIt was so good to hear your voice and chat this evening. My heart and prayers are with you and your family as you grieve the loss of your wonderful dad. As you mentioned, I imagine your emotions will be all over the place, especially now that you and your mom are “empty nesters.” That is completely expected.

Although…

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Thanks for the updates, @carol-volckmann and your home in Kent, @Colleen-Steele . Was Aidan home when it was so bad?

Grateful you all are safe.

Also, they thought I had shingles last summer. I’m still not convinced it was definitely shingles but grateful it’s over. @Randolph Reynolds ? How’s 2026 treating you?

@carol-volckmann , how are you…

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Great tip for @Reen312 , thanks so much @Colleen-Steele , I bet this will be helpful. Let us know if you find it helpful, Reen.

Colleen, My sympathies on the death of your Dad. I know how hard that is. The holidays here in FL were quiet, and Tim and I had a lovely Christmas. New Year’s DAY, we hosted my FL in-laws for chili and salad and football. Again, nothing fancy. Now in Jan, I am anticipating friends who will come and stay with us for their vacation. I get…

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I belong to the CTEPH online support group. We Zoom-meet monthly. Not only has it been a help, but there is a core of us who have managed to meet in real time, phone, text, and in general have become good friends. I also belong to the MI support group for PAH. And we, too, have become friends. So go ahead and start a group, online, Zoom, or…

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Dear Colleen, When Jen wrote that you and your family needed prayers, I just knew it was something with one of your folks. You have my deepest sympathy. Loosing your Dad is awful. Having to deal with everything else and still grieve is miserable and everything inside you aches. I lost my Dad; he also was under Hospice care. I only…

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@carol-volckmann Thank you as always for your love and support!

@Terese Tuohey I needed those prayers! Thank you! My dad went into hospice on Christmas Eve and passed on New Year’s Eve. Somehow, I still managed a Christmas tree and a few gifts for mom. It was difficult, but love and support from family and friends have gotten us through it. How was your Christmas, and how is the new year treating you?

@carol-volckmann I am relieved to hear that you weren’t seriously affected by the floods! Our home in Kent was safe too. We are on a hill which protected us from the flooding.

How are you? How are you and Dick feeling?

@JoliefromThePHlip-side Thank you for your advocacy and effort to spread PH awareness! We are grateful to have you as a forum member.

Whether you lost a parent(s) long ago or recently, how have you dealt with it? Did they pass from PH? Were they your PH advocate, or did you start your PH journey without them and wish they had been here through the ups and downs?

My dad had been in hospice since Christmas Eve, and he passed away on New Year’s Eve. As you can imagine, this…

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