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On the PH News homepage there is a column about the European Reference Network on Rare Respiratory Diseases (ERN-Lung) Project. According to the article ERN-Lung presents an initiative called “Patient Journeys” which presets testimonies showing the clinical history and needs of patients through the various phases of diagnosis, treatment and care.
Some of you might find this interesting and helpful. If so, I encourage you to discuss and share your thoughts here.
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