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Have You Ever Experienced A Seizure?
My son has experienced three seizures in his life. One was pre-diagnosis and a what I would describe as quiet and deceptive. We didn’t know until he was diagnosed that it was actually a PH induced seizure that he had experienced. He was in the ocean when his body suddenly went rigid and his eyes stared off into space for a few minutes.
The other two were post transplant and very frightening. They were full blown seizures that caused his body to jerk and shake and his eyes roll. It was a reaction to an immunosupresent that he no longer takes. Luckily he was in the hospital when this happened because I was terrified and I wouldn’t have known what to do if it had happened at home.
I know that Brittany has recently experienced a seizure and I’ve known some patients who have struggled with them on occasion. Personally I fear them and my son continues to be at risk of having them in the future.
Have you experienced seizures and were at home when they happened? What steps were taken to help you while you were having the seizure. I would appreciate tips on what to do if this ever happens at home.
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