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    • #25316
      Jen Cueva
      Moderator

      Often PH patients end up requiring supplemental oxygen from diagnosis or as their disease progresses. I wanted to see how often y’all are changing your nasal cannulas. I often change mine every few weeks. I am not on oxygen 24/7. If so, I would change mine every few days, if not weekly.
      I also tend to change mine if I have enough if I have been sick, even with like a cold.

      You can also clean your cannulas if you are running low. I have also cleaned mine with a vinegar and water solution. Have y’all tried cleaning yours?

      So, how often are you changing your nasal cannulas? Did you receive any suggestions about this from your doctor or oxygen provider?

    • #25425
      Jerry Isenhart
      Participant

      I learned the hard way – Change them weekly at least. The tips that insert into the nostrils get hard after a period of time and were causing me to have nose bleeds. Once I started changing out my Cannula more frequently, the problem stopped.

    • #25431
      Jen Cueva
      Moderator

      Hi @jisenhart, changing them weekly is excellent! Excellent point about the nose bleeds. Are you also using a humidifier bottle? Before I had those, I had more issues with nosebleeds. Thanks for sharing your experience.

    • #25441
      Margie Novak
      Participant

      Jen, I change mine about twice a week. I order mine on-line so my are a little more flexible Hate those long hard cannulas Also, sometimes the break where the nose part and the tubing part connect I also have an water bottle on my concentrator and through my machine at night. My nose still gets very irritated and I have to use nasal moisturizing spray. Hang in there everyone!!

    • #25442
      Jerry Isenhart
      Participant

      The Cannulas that I get when I’m at my doctors office or having an Echo Cardiagram etc are much softer and much more gentle. So I take them home.
      The ones I get from my Durable Equipment Provider ( oxygen tanks etc) are much harder etc. Where do you all order your Cannulas on-line? And what is the part number or ?? So I can be assured I am getting the softer variety?

    • #25447
      Margie Novak
      Participant

      Jerry, I use a company called Direct Home Medical. I order the WestMed High Flow ComfortSoft Plus (Super Soft) Nasal Cannula with 4 Foot Green Oxygen Supply Tubing. It did not have an item number. They have a webpage. I hope this helps. They are not that expensive either and delivery is very fast. Take care and best of luck fighting PH!!!

    • #25453
      Jen Cueva
      Moderator

      Hi @margie-novak, thanks for sharing your medical supply company. I also know several PHriends who order from eBay and Amazon. I use a mini cannula as my nose is small. The tubing is much smaller, and it works for me. I am sure as you already know, it is all about finding what is comfortable for you.

      I can relate to having dry and irritated nostrils. I also use a humidifier bottle and nasal gel, Ayr. They have spray and gel. I prefer the gel. I apply with a Q-tip.

      Take care, and thanks for sharing your information with Jerry.

    • #25454
      Jen Cueva
      Moderator

      Hi @jisenhart, if you find a nasal cannula that you like. You can ask your medical supplier to order it for you. I use Apria healthcare, and they order the micro-cannulas that I prefer. Good luck. I hope that you find one that works best for you.

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