July 16, 2020 at 11:53 am #26273Jen CuevaKeymaster
For those of you who have visited, registered, and contributed to topics within the PH News forums, thank you! As a member of this online community, you are helping to create a platform that unites patients, caregivers, friends, family members, advocates, researchers, and medical professionals who strive to raise awareness for PH.
If you aren’t aware of this new initiative, please take a look at the different forums here. Registration is free — just create a profile. You can then read and contribute to a variety of different topics that might impact someone living with PH, or someone caring for a loved one with this disease.
For members who have joined, it would be wonderful to hear your thoughts. Below are some suggestions to help you navigate the forum, and what to do once you have registered and created a profile.
Join a Forum:
Some forums are targeted to specific roles, such as separate forums for patients and caregivers/spouses. Some forums welcome anyone in the PH community, regardless of role, location, or age. The forums will continue to evolve as members suggest new ideas each day.
Contribute To a Topic or Start Your Own:
Within each forum are topics and discussions that involve both members and the moderators. These topics can be about anything that’s on your mind, from something you’re questioning to something you’re seeking advice about. They can also be posted to connect with others who might be in a similar stage of the illness as you are, such as seeking treatment or having just been diagnosed. There is no topic too large or small for the forums. This is your community, and our goal is to meet your needs as we support each other.
Privately or Publicly Message Another Member:
This feature is similar to other social media platforms where you can reach out to someone publicly (similar to a Facebook post) or privately (direct message). Perhaps a member contributed to a topic or started a discussion that resonated with you, and you would like to learn more. You can private message them to connect directly about what they’ve shared. You can also use this feature to communicate with moderators and to ask them questions. Suggestions for discussion topics are welcome.
Add a Friend:
Members have shared where they reside, in hopes that local networking can take place. Regardless of geographical proximity, some members will form more natural relationships. The “add a friend” feature offers a way for those people to keep in touch quickly and more frequently. This is similar to having friends on Facebook, as they will see updates and posts that you have made. It’s wonderful to see new friendships beginning to form. This is an optional resource, as always.
We look forward to having you join us! Please do not hesitate to reach out to me, @colleensteele, or @brittany-foster if you have any questions. We hope this will help you understand how to post a topic and other tips on using our PH forums. We admire the support and empathy that our forum members continue to show toward one another.
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