The world is full of opinions, personalities, and attitudes. On my first day of nursing school, our dean told us to treat others as we’d treat our family or loved ones. How would we want nurses to treat them? This stuck with me, as I’ve tried to deal with others…
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“Success is the sum of small efforts, repeated day in and day out.” My son Cullen could have been the poster child for this famous quote by Robert Collier. The 20th century American author of self-help books believed that “when it comes to finding true success, one needs to…
SteadyMed, Ltd., a company that develops products to treat orphan and high-value conditions with unmet parenteral delivery needs, recently announced that its lead product candidate, Trevyent® has been granted Orphan Drug Designation by the U.S. Food and Drug Administration (FDA) for the treatment of pulmonary arterial hypertension (PAH).
Day 22 of 30 Days of PH Topic: How I Cope With PH This is Margarita’s Story @marmarango My name is Margarita Arango. I am 39, and my PAH journey has been a long one. At 19, I experienced symptoms of rheumatoid…
U.S. specialty biopharmas SteadyMed and United Therapeutics both issued media releases recently commenting on a ruling by the U.S. Patent and Trademark Office (USPTO) that declared invalid a United Therapeutics patent related to the drug treprostinil, a synthetic analogue of prostacyclin. Prostacyclin and its analogues are widely used in…
Don’t Picture My Son With PH
They say pictures are worth a thousand words, but sometimes they can be a one-sided conversation. Some photographers tell better stories, but it’s usually up to the observer to gather hints from the picture to understand what’s going on. Smiling people must be happy. Crying people must be sad.
Marking Time After Transplant
Days We counted time in days after my surgery. The first few were a blur. “How many days was I asleep?” I wondered. I was lucky. Thursday night, I went into the operating room. Friday night, I got off the ventilator. (Courtesy of Kathleen Sheffer)…
Since May, I’d been faced with a challenge familiar to many women: finding the perfect dress for a wedding. Two close friends of mine were married last weekend, and I had the honor of attending the wedding and reciting original poetry during the ceremony. After my heart-lung transplant in…
“The courage it takes to share your story might be the very thing someone else needs to open their heart to hope.” — Unknown My hands were clammy and my heart was racing as I waited to meet a prospective new primary care provider (PCP). I sat in the…
I’ve been quiet in this space for longer than I intended to be. Call it writer’s block or an exceedingly busy work schedule or no particular reason, really. I just didn’t put fingers to the keyboard in a way that produced any writing worthy of sharing with the…
“How are your focus and concentration? Do you need help to stay engaged while reading, writing your columns, or watching movies?” These were the questions my psychiatrist posed to me during our recent telehealth session. Surprisingly, she linked my attention-deficit/hyperactivity disorder to long-term COVID-19. But she reminded me…
Today is Valentine’s Day, y’all. I know that some of you are eating fancy chocolates and sipping wine, all the while blowing kisses to your love. But for me, Valentine’s Day brings an outpouring of mixed emotions. Fifteen years ago, my life was dismantled in more ways than I can…