Lynn’s Pulmonary Hypertension and Lung Transplant Story

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by Wendy Henderson |

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Scleroderma has often been associated with a higher risk of pulmonary arterial hypertension (PAH). This is because, in patients with scleroderma, there is progressive blood vessel contraction (narrowing) that often leads to an increase in blood pressure in the lungs, which can develop into PAH.

Researchers in Italy have developed a clear way of exploring differences in autoantibodies to predict which scleroderma patients are likely to develop pulmonary arterial hypertension. Read more here. 

In this Froedtert of the Medical College of Wisconsin video from November 2015, Lynn Carey discovered she had pulmonary hypertension at the age of 50. The underlying cause of her pulmonary hypertension turned out to be sine scleroderma.

Lynn’s pulmonary hypertension was so bad she needed to be on oxygen 24 hours a day, and couldn’t walk more than a few yards. Thankfully, she received a call telling her a pair of lungs were available, and Lynn’s life changed remarkably.

Read more about research that claims end-stage lung disease patients with diseases such as scleroderma should not be denied the opportunity of receiving a lung transplant. 

Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

A Conversation With Rare Disease Advocates