“It’s a hassle remembering what times I have to take my meds now, and cleaning all of the equipment and whatnot. I really hope that this medicine helps … I just find it a huge distraction.”
“It makes me upset that pulmonary hypertension is holding me back from doing things I love, like baseball.”
“Everyone asks me about my pulmonary hypertension bracelet lately. It’s nice to be able to explain but it’s a bittersweet feeling. After they hear that I’m sick the way that they look at me is forever changed.”
According to Pulmonary Hypertension Association, being a teenager is all about becoming more independent, meeting new people, figuring out how to fit in with your friends, thinking about who you are, and making plans for the future. These years can be rough for anyone, but for teens with pulmonary hypertension they can sometimes feel especially unfair and stressful. You may be trying your very best to do it all: hang out with friends, keep up with homework, and come up with answers to big questions like: “What do I want to do with my life?” And then, on top of everything else, you’re expected to deal with PH. Between all the medications, missed school, and doctors’ appointments, it can feel like a lot.
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