In this video from PHAware Global Association, Dr. Dunbar Ivy from the Children’s Hospital in Colorado talks about the need for a mobile app for pulmonary hypertension (PH) patients.
Ivy explains that when PH patients go to see their doctors, they have to rely on their memories to share how they’ve been feeling over the course of a few months. A mobile app would allow patients and their caregivers to record significant information between visits which could be shared directly with their healthcare team.
Access to ongoing live data about how PH patients are coping with the disease from week to week could also be used to help gain support and funding from the FDA for research into better treatments.
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