Welcome to Jen Cueva’s “Worth the PHight,” a new Pulmonary Hypertension News Today column.
Hey, y’all! I am happy to be here writing this column, and I hope it will help others out there who are PHighting this same PHight. Living with pulmonary hypertension (PH) for the last 14 years, I have experienced the same struggles and ups and downs as most others living with a rare illness. It hasn’t been easy, but it definitely has been “Worth the PHight.”
I am a “well-seasoned” PH patient, so while I was brainstorming about what my first post would entail, I came up with a handful of topics. I finally decided to write about why I am worth the PHight.
A little about me
My name is Jen. I was diagnosed with PH in February 2005. I know this may sound like a lifetime ago for someone living with an incurable disease that used to have a life expectancy of just a few years. I definitely am proving many doctors wrong as I continue to PHight, and remain hopeful as we work toward a cure for this life-altering disease. My goal for this column is to help others who may be starting out on their PH journey, as well as offer tips to well-seasoned PH patients.
Some may ask why I am worth the PHight. It’s because I am a living, breathing, loving soul who deserves to live the best life I can. I was created for this life. I am a mother, wife, daughter, and friend. These reasons are enough for me to continue this PHight! Do you want to know something? I think that you are worth the PHight, as well.
I wish I could tell you that my days are full of positive vibes and happy tears. In reality, they’re filled with fatigue, chest pains, tears, shortness of breath, fears, and anxieties. Then there are the lab appointments, doctor appointments, and miscellaneous medical tests. Life with a rare illness is a busy one. It can often feel like a rollercoaster ride; you never know whether your day will be uphill or downhill. It can change in a second, so just buckle up, hang on, and enjoy the ride!
You know how they say “it takes a village to raise a child”? We who live daily with such an overwhelming and unpredictable disease need the village, a team, and loving support! I know I would have never made it 14 long years without my loving and caring support team. If you’re reading this column, you are likely a patient or a caregiver, or know someone who has PH. I am grateful that you are here. Together, we will continue this PHight!
I hope that that sharing my daily struggles and ups and downs in living with PH will benefit others. Bringing a little hope and joy into those tough days is my purpose in writing this column.
Note: Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Hypertension News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary hypertension.