Coexisting Conditions Make Managing PH Even More Challenging

Coexisting Conditions Make Managing PH Even More Challenging
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Managing pulmonary hypertension (PH) can be exhausting. Adding coexisting conditions makes it even more challenging.

Like me, many people struggle to manage multiple illnesses. In addition to PH, I deal with chronic kidney disease (CKD), iron deficiency anemia, and a few others. It can be overwhelming. Some say it is a full-time job and I would not argue with that.

The worst feeling is not knowing which disease or medication is causing my symptoms. The chest pain and palpitations may be related to my heart and PH, or symptoms of my anemia. The swelling and puffiness from fluid retention are symptoms of either my PH or CKD — or a combination of the two. The unrelenting fatigue is common among all of my illnesses. Lucky me.

Living with coexisting illnesses takes a toll physically and mentally. Deciphering which came first is difficult. I work hard to focus on what my body is telling me. Learning to listen to my body is a daily struggle. I know that when one organ is affected, a downward spiral in my overall health likely will follow.

Because I am dealing with more than one disease, I also have multiple specialists with multiple ideas on my medical team. Their opinions often clash, which is frustrating and confusing for me. Thankfully, all but one of my specialists work at the same hospital. It is crucial that I trust my medical team.

I often run into roadblocks when taking medications to help each disease and the side effects. A specific medication used to treat one disease is contraindicated with another. It is like a balancing act in a circus. Yep, some days I am the circus clown.

Most weeks, I have labs or appointments. It can be exhausting. I try to schedule appointments for certain days of the week, keeping Monday open in case I need to rest after a busy weekend.

If you or your loved ones are dealing with PH and coexisting illnesses, I encourage you to take it easy on yourself. Ask questions of your specialists. Make a list of medications or activities that helped or worsened each symptom. These little notes can help find the culprit, especially when managing coexisting illnesses.

Do you struggle as you try to manage your PH and coexisting conditions? Share your thoughts in the comments below. 

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Note: Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Hypertension News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary hypertension.

Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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4 comments

  1. Erika Ellis says:

    Hi, I just got diagnosed with PAH and I already have Rheumatoid Arthritis , asthma, allergies, gerd, and recently survived pulmonary emboli in my left lung. So it is definitely going to be a challenge.

    • Jen Cueva says:

      Hi Erika,
      I am sorry to hear about your diagnosis of PH. But, it sounds like you’re experienced with medical issues. Do you know if your PH was caused by the blood clots? Managing multiple illnesses can be difficult but doable.

      You may find our PH forums helpful, it’s easy to sign up. You may benefit from the support there as a new PH diagnosis can be overwhelming.

      https://pulmonaryhypertensionnews.com/forums/

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