30 Days of PH: Challenges in Mexico

30 Days of PH: Challenges in Mexico
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Day 25 of 30 Days of PH⁣ Topic: Challenges in Mexico⁣ ⁣ This is Adriana’s story @adriana_p⁣ ⁣ I’m Adriana Posada Avalos, I am 55 years old. I’m a daughter, sister, and friend of great friends. I'm a mother of 2 daughters, whom I deeply love.⁣ ⁣ In 2005 I was diagnosed with IPAH-Idiopathic Pulmonary Arterial Hypertension, just 3 months after I had the first symptoms such as dyspnea, fatigue, and fainting. Because I was diagnosed early, this helps me to be a long- term patient now.⁣ ⁣ I was lucky to be accepted at one of the best specialty hospitals in Cardiopulmonary. They offered me little hope of life, but in my mind, the word death was never engraved.⁣ ⁣ The disease threw me into bed. I not only took care of my body but also my mind and soul. It took me months to learn to relax, to leave stress. and love me, with this new life including this disease, IPAH.⁣ ⁣ After 15 years, I’m still standing after atrial septostomy and switch of Sildenafil to Riociguat. I ́ve realized through my friendships with many PHriends there isn't ́t a big difference between them and me with concerns about how can we be treated. The main difference between Mexico and the US is that in the US they have IV or SubQ meds. Although this comes with a high cost to them. Also, they have the opportunity of double lung and heart transplant. Nevertheless, in my country, only 2 surgeries are available, atrial septostomy and thromboendarterectomy, which can be used as treatments or cure in some cases.⁣ ⁣ In Mexico, only rich people have access to all treatments. Rich people have everything they need. Others, like myself, have to PHight struggling and waiting for medicines with our current president. ⁣ ⁣ I’m not this disease! I’m Adriana Posada, a person grateful every day of life. Because of adversity, I ́ve become a resilient person. In every moment of darkness, I ́ve found light and learned the ways to come out of it!⁣ ⁣ I live easier in pain thinking that I am my own hero. This comes along with the strength to carry on and my cast my fears aside while knowing I can survive. Who knows what miracles I can achieve when I believe, somehow I’ve found when I believe I can do it!⁣

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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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Jen Cueva is a “ well -seasoned” patient who has been living with pulmonary hypertension (PH) since 2005. Although her favorite place is Southern California, she now lives on the Texas Gulf Coast. She lives with her supportive and comical husband and their Mini Schnauzer named Sasha. Prior to acquiring pulmonary hypertension (PH), she worked in nursing, which she wholeheartedly loved. She enjoys cooking for her family, listening to live music, and sitting by the water. You can also find her visiting local coffee shops with her daughter(as she writes or chills) or at a medley of restaurants. She’s a total foodie! In her weekly column, ”Worth the PHIght ”, she delves into the rollercoaster of emotions that she faces living with PH. She hopes to share her challenges and tips while touching on current topics with other PH patients and their caregivers. Her goal is that by sharing her PH journey, she will inspire and instill hope in others. Together, eventually, we will find a cure for pulmonary hypertension- Never give up hope.
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