If you saw me you would probably notice my bright blue eyes (thanks, Pawpaw) or my huge smile. You might not realize that behind the smile, I am hiding something.
I have been hiding the chronic pain that has been affecting me for a long time. It’s not that I’m being dishonest about it, I simply prefer to smile and laugh instead of crying. I’m certain that I’m not the only person with pulmonary hypertension (PH) who can relate to that.
Last week, I ended up in the emergency room with ongoing chest pain, pressure, and tightness related to my PH. My entire body felt like I had been run over by a truck. I already had pain medications, but the maximum dosage provided no relief. Usually, these medications, along with rest and oxygen, offer some relief. But this time they didn’t, and I was admitted to the hospital for several days for pain management.
My PH doctor ordered intravenous pain medications. The pain management doctor was wonderful and implemented an effective plan. Unfortunately, she doesn’t have an outpatient clinic, so I will need to follow up with an outpatient pain management specialist. I am not happy about adding another specialist to my list of doctors, but I know that discovering new ways to relieve my chronic pain will improve my overall quality of life.
Some of my PH medications can cause pain, which adds to the chest pains. On some days, I just want to hide under a blanket. On other days, I want to cry. I don’t often cry, but last week I did just that — I sat and cried. I must have looked pitiful, but I was at my breaking point.
My chronic pain has several sources, including chronic kidney disease that causes me horrific back pain at times. Some people with PH may have site pain caused by subcutaneous medications. Others, like me, also deal with the side effects of oral or intravenous medications.
Pulmonary hypertension has affected me for almost 15 years. Chronic pain, which I’ve also dealt with for years, is an added perk. I’ve tried to block it mentally by thinking it will go away. But it always seems to return. This time, it has affected my body for nearly a week without remission.
I was told several years ago that I should try a pain management specialist, but I didn’t think I needed one. At this point, I think my next plan is to have medications available so that the pain doesn’t spiral out of control again. I can no longer continue to ignore it, which only makes it worse. I have been covering up the fact that I’m dealing with so much pain, even from my family.
Living with a life-threatening illness like PH is taxing on my mental health. With chronic pain, it’s even worse. I’m frustrated, apprehensive, and scared, as I’ve never been someone who takes pain medications. But I realize that my current demeanor isn’t normal, and that also frustrates me.
Chronic pain can be debilitating and prevent us from enjoying life to the fullest.
Do you experience chronic pain related to your PH? How do you manage it? Please share in the comments below.
Note: Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Hypertension News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary hypertension.
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