As a child, I enjoyed writing. My Moma always reminds me of the “I’m sorry” letters I wrote when I did something wrong. Writing cards and notes and mailing them is something I have always enjoyed. Once my parents divorced, we moved around often. This made it difficult for me. But I tried to keep up with some of my closest friends via letters. Of course, we did not have social media to stay in contact with as we do now.
Last year when Brad, the director of columns for Pulmonary Hypertension News, interviewed me about writing my column, I was overjoyed. It was around the same time that I was talking about starting my old blog up. I wanted to write and fulfill a purpose; this timing was perfect. I remember he asked me what I would write about. I vaguely remember, but I am sure that I was rambling as I was so nervous and excited. Although, in the back of my mind, I was asking myself how I would ever have that much to write about.
I named my column “Worth the PHight.” My goal was to share the ups and downs of my PH journey with others while offering hope. Sharing helps others know they are not alone. Because PH does not yet have a cure, we all continue to PHight this journey together. Together we are stronger as we promote self-advocacy and spread awareness. Little did I know just how much writing my column would help me, too. Writing is therapeutic.
Fast forward a year later. I have written every week, and I still have topics to write about. Realizing how much others enjoy reading about my journey with pulmonary hypertension inspires me. BioNews Services, the parent company of Pulmonary Hypertension News, has offered me that purpose. I also have the opportunity to meet and talk with those around the world living with rare diseases. BioNews Services has about 65 rare disease communities.
These are the most empathetic, caring, and amazing people I know. They have become another family for me. Everyone I have had the opportunity to talk to has been genuine and compassionate. I also recently started moderating the PH News Forums. I work with the other moderators, Brittany and Colleen, daily. Before I was a moderator, I visited the forums most days. This close-knit group of PH patients and caregivers offers abundant support. I learn from the members daily.
Despite 15 years of living with PH, the forum members continue to teach me. I’ve always been the caregiver type. I worked in nursing before PH and that desire to help never left me. Finding new ways that I can help and support others on their PH journeys is cathartic for me.
Thank you to my readers. Each week you continue to support me and share my column with others. You do not know how grateful I am for you all. To our PH forum members, thank you for showing up and supporting others while you are PHighting yourselves. Last but not least, thank you to my BioNews Services family that took a chance on me. You all are some of the most passionate and empathetic people I know. Every day you shine your light on others while fighting your own battles.
Let’s continue to support and lift others with love, encouragement, and air hugs, for now. I will leave you with one of my favorite quotes. I look forward to and am excited to start another year with y’all.
“I’ve learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” –Maya Angelou
Note: Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Hypertension News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary hypertension.
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