Author Archives: Colleen Steele

30 Days of PH: Dealing With The Elephant in the Room

Day 29 of 30 Days of PH⁣ Topic: Dealing With The Elephant In The Room This is Skarlette’s Story @skarletteisdead    In December 2015, I was diagnosed with pulmonary hypertension and heart failure. My diagnosis did not come easily. I’d been struggling for…

30 Days of PH: What PH Has Taught Me

Day 28 of 30 Days of PH⁣ Topic: What PH Has Taught Me This is Jacque’s Story @jacque.wilkinson Even with all the negative that comes with this disease, it has taught me so many things. First, it taught me to slow down. I was an…

30 Days of PH: Life Before and After PH

Day 26 of 30 Days of PH⁣ Topic: Life Before and After PH This is Karen’s Story @karensawyer3384   My life before IPAH: Hairstylist, Salon owner, traveled, attended concerts, and hair shows. But in 2013, I blacked out on the way to the bathroom. I was…

30 Days Of PH: My Girlfriend’s Son Has PH

  Day 24 of 30 Days of PH⁣ Topic: My Girlfriend’s Son Has PH This is Galen’s Story The world of PH is still relatively new to me in comparison to my age. I’m 42 now, and I’ve been actively involved in the lives of a…

Reflections From a Thankful Caregiver

Are you a pulmonary hypertension (PH) caregiver? If so, then November has been your special month. Thanksgiving is celebrated this week in the U.S., and all month there has been a focus on PH awareness and on many of you. That’s right — on many of you — because…

30 Days of PH: How I Cope With PH

  Day 22 of 30 Days of PH⁣ Topic: How I Cope With PH This is Margarita’s Story @marmarango My name is Margarita Arango. I am 39, and my PAH journey has been a long one.  At 19, I experienced symptoms of rheumatoid…

30 Days of PH: Power In Vulnerability

Day 21 of 30 Days of PH⁣ Topic: Power In Vulnerability This is Gerry’s Story @_gllangan   When I was diagnosed in September 2018, I had severe IPAH and severe congestive heart failure. I was put on an IV infusion pump with Remodulin and it was…

30 Days of PH: PH Angel Warriors Empowering Advocacy

Day 20 of 30 Days of PH⁣ Topic: PH Angel Warriors Empowering Advocacy This is Julie’s Story @JulieKeeton  The Pulmonary Hypertension Mom life seems like a lifetime ago, but the wounds of how it ravaged Weston’s tiny body are still so fresh in our hearts.

30 Days of PH: When PH Is In The Family

Day 19 of 30 Days of PH⁣ Topic: When PH Is In The Family This is Joanne’s Story @Zoanna6464   My PH story is a family one. My mom’s sister, Josephine, died at 23 in 1963. She was newly married, and her symptoms really came…