Author Archives: Colleen Steele

30 Days of PH: 19 Years And Counting

Day 10 of 30 Days of PH⁣ Topic: 19 Years And Counting This is Shannon’s story 19 years on May 31, 2001, my life changed forever. I was a couple of days away from graduating kindergarten and my parents were told I had roughly three to six months…

Finding Balance Between Optimism and Pessimism

There are times in life when I believe it is necessary to sit on the fence between optimism and pessimism. A pulmonary hypertension (PH) diagnosis and the battle that follows is one of those situations. My husband, Brian, recently put a creative spin on this perspective when he participated…

30 Days of PH: Quality of Life Improved By Potts Shunt Surgery

Day 8 of 30 Days of PH⁣ Topic: Quality of Life Improved By Potts Shunt Surgery⁣ This is Jennica’s story @jenn2104   Our 14-year-old daughter, Brooklyn, was diagnosed with Idiopathic Pulmonary Hypertension when she was 3 years old. After complaining of “her heart hurting” we took…

30 Days of PH: Why I Raise Awareness

Day 7 of 30 Days of PH⁣ Topic: Why I Raise Awareness ⁣ This is Barbara’s story The main thing pulmonary hypertension patients have in common is being misdiagnosed for too long. Prior to my diagnosis, my husband, Chuck, took me to 14 doctors. I…

30 Days of PH: Organizing PH

Day 6 of 30 Days of PH⁣ Topic: Organizing PH ⁣ This is Jane’s story @Jane_Northrop   My daughter, Nicole, was diagnosed with Eisenmenger’s Syndrome, PAH, and congenital heart defects in January 2010 at the age of 15, after being misdiagnosed her whole life.  …

30 Days of PH: I Will Not Let PH Win

  Day 5 of 30 Days of PH⁣ Topic: I Will Not Let PH Win ⁣ This is Daniel’s story @nflxfl21 Hello, my name is Daniel York. I was diagnosed with Pulmonary Hypertension in 2007. It wasn’t until 2010 that I found out that my…

30 Days of PH: Staying Positive With PH

Day 4 of 30 Days of PH⁣ Topic: Staying Positive With PH ⁣ This is Kathleen’s story @irishkathg  I was diagnosed with Pulmonary Hypertension in May 2009. I was prescribed two oral medications but as the months passed, I got increasingly tired and short of breath. By…

30 Days of PH: Life Lessons From Charlie Brown

Day 3 of 30 Days of PH⁣ Topic: Life Lessons From Charlie Brown This is Brian’s story @zipptang Charles M. Schulz, the creator of the Peanuts comic strip, penned this conversation between Linus and Charlie Brown. Linus: Nothing goes on forever.

30 Days to Be Thankful and Aware

November is a special month for many. It is a time to gather with friends and family, and share a meal, memories, current events, and hope for the future. Now is the season for reflecting on our lives and being mindful of what we have to be thankful for. Feeling…

30 Days of PH: Hidden Blessings

Day 2 of 30 Days of PH⁣ Topic: Hidden Blessings My name is Dawn. I was diagnosed with Pulmonary Hypertension in April 2018. It took a little over 3 years to get the diagnosis of PH. I had so many tests over those 3+ years…

30 Days of PH: Planning for the Future

Day 1 of 30 Days of PH⁣ Topic: Planning for the Future ⁣ This is Hannah’s story @hrolsn   I’ve always been a planner; I dream about the future, I make lists, I research all my options and then I make it happen. At 19 years…