Author Archives: Colleen Steele

30 Days of PH: Power In Vulnerability

Day 21 of 30 Days of PH⁣ Topic: Power In Vulnerability This is Gerry’s Story @_gllangan   When I was diagnosed in September 2018, I had severe IPAH and severe congestive heart failure. I was put on an IV infusion pump with Remodulin and it was…

30 Days of PH: PH Angel Warriors Empowering Advocacy

Day 20 of 30 Days of PH⁣ Topic: PH Angel Warriors Empowering Advocacy This is Julie’s Story @JulieKeeton  The Pulmonary Hypertension Mom life seems like a lifetime ago, but the wounds of how it ravaged Weston’s tiny body are still so fresh in our hearts.

30 Days of PH: When PH Is In The Family

Day 19 of 30 Days of PH⁣ Topic: When PH Is In The Family This is Joanne’s Story @Zoanna6464   My PH story is a family one. My mom’s sister, Josephine, died at 23 in 1963. She was newly married, and her symptoms really came…

30 Days of PH: Self-Employment And PH

Day 16 of 30 Days of PH⁣ Topic: Self-Employment And PH This is Kathleen’s story @kathleen.s.photography and @rosecoloredmask When I graduated college 15 years after my diagnosis, I started a freelance photography business in San Francisco. Self-employment allowed me to make a schedule that accommodated…

As Cullen Turns 21, We Celebrate Another Milestone

Adulting is hard. As children, we look forward to the freedom to make our own decisions, but being responsible for ourselves isn’t always as satisfying as we thought it would be. Even those blessed with a supportive family and friends are still affected by the choices they make. There are…

30 Days of PH: I Have PH And Walked A 5K

Day 15 of 30 Days of PH⁣ Topic: I Have PH And Walked A 5K ⁣ This is Aubrey’s story My Name is Aubrey Stout and I’m 39 years old. I was diagnosed with Idiopathic Pulmonary Arterial Hypertension on January 10, 2010, when I was…

30 Days of PH: Why Give Up Now?

Day 14 of 30 Days of PH⁣ Topic: Why Give Up Now? This is Jon’s story I have Pulmonary Hypertension. To be specific, I have secondary pulmonary hypertension due to a congenital heart defect, transportation of the great arteries. I also have congestive heart failure as a complication of…

30 Days of PH: Growing Up With PH

Day 13 of 30 Days of PH⁣ Topic: Growing Up With PH This is Tatiana’s story @lolmamio531   My life before I was diagnosed is significantly different from how I have to live my day to day life now. I was diagnosed with Pulmonary Arterial Hypertension (PAH) at…

30 Days of PH: Life in 25ft.

Day 12 of 30 Days of PH⁣ Topic: Life in 25ft. This is Tracey’s story @tracey.lawrence   I was diagnosed with PH almost a year ago. The diagnosis came in rather traumatic circumstances with me going into respiratory arrest and heart failure following a routine IV…

30 Days of PH: PH Changed My Life For The Better

  Day 11 of 30 Days of PH⁣ Topic: PH Changed My Life For The Better ⁣ This is Sarah’s story @sizemore.37   My name is Sarah Sizemore, I am 19 and I have Pulmonary Arterial Hypertension (PAH). This severe and life-threatening illness progresses with time.