30 Days of PH

In recognition of PH awareness month, PH News has reached out to patients, caregivers, medical professionals and many others, to share their stories and unique perspective on PH and how it has impacted their lives. We will be sharing these stories daily though the entire month of November.

30 Days of PH: Self-Employment And PH

Day 16 of 30 Days of PH⁣ Topic: Self-Employment And PH This is Kathleen’s story @kathleen.s.photography and @rosecoloredmask When I graduated college 15 years after my diagnosis, I started a freelance photography business in San Francisco. Self-employment allowed me to make a schedule that accommodated…

30 Days of PH: I Have PH And Walked A 5K

Day 15 of 30 Days of PH⁣ Topic: I Have PH And Walked A 5K ⁣ This is Aubrey’s story My Name is Aubrey Stout and I’m 39 years old. I was diagnosed with Idiopathic Pulmonary Arterial Hypertension on January 10, 2010, when I was…

30 Days of PH: Why Give Up Now?

Day 14 of 30 Days of PH⁣ Topic: Why Give Up Now? This is Jon’s story I have Pulmonary Hypertension. To be specific, I have secondary pulmonary hypertension due to a congenital heart defect, transportation of the great arteries. I also have congestive heart failure as a complication of…

30 Days of PH: Growing Up With PH

Day 13 of 30 Days of PH⁣ Topic: Growing Up With PH This is Tatiana’s story @lolmamio531   My life before I was diagnosed is significantly different from how I have to live my day to day life now. I was diagnosed with Pulmonary Arterial Hypertension (PAH) at…

30 Days of PH: Life in 25ft.

Day 12 of 30 Days of PH⁣ Topic: Life in 25ft. This is Tracey’s story @tracey.lawrence   I was diagnosed with PH almost a year ago. The diagnosis came in rather traumatic circumstances with me going into respiratory arrest and heart failure following a routine IV…

30 Days of PH: PH Changed My Life For The Better

  Day 11 of 30 Days of PH⁣ Topic: PH Changed My Life For The Better ⁣ This is Sarah’s story @sizemore.37   My name is Sarah Sizemore, I am 19 and I have Pulmonary Arterial Hypertension (PAH). This severe and life-threatening illness progresses with time.

30 Days of PH: 19 Years And Counting

Day 10 of 30 Days of PH⁣ Topic: 19 Years And Counting This is Shannon’s story 19 years on May 31, 2001, my life changed forever. I was a couple of days away from graduating kindergarten and my parents were told I had roughly three to six months…

30 Days of PH: Quality of Life Improved By Potts Shunt Surgery

Day 8 of 30 Days of PH⁣ Topic: Quality of Life Improved By Potts Shunt Surgery⁣ This is Jennica’s story @jenn2104   Our 14-year-old daughter, Brooklyn, was diagnosed with Idiopathic Pulmonary Hypertension when she was 3 years old. After complaining of “her heart hurting” we took…

30 Days of PH: Why I Raise Awareness

Day 7 of 30 Days of PH⁣ Topic: Why I Raise Awareness ⁣ This is Barbara’s story The main thing pulmonary hypertension patients have in common is being misdiagnosed for too long. Prior to my diagnosis, my husband, Chuck, took me to 14 doctors. I…