“I’m doing fine. Thanks for asking.” This is the response I usually give to people when they ask, “How are you?” Most people I say this to don’t want to hear the truth and probably wouldn’t understand it anyway. I have learned over…
Columns
It is said that good things come to those who wait. But when you are waiting for a loved one to get out of surgery, patience has nothing to do with the outcome. Neither does worrying. Fear is difficult to subdue under these circumstances. The longer the wait, the more…
An Open Letter to My Family
Life is tough. Living with pulmonary hypertension (PH) and other illnesses impacts not only my life but my family’s lives, too. I have touched on this topic briefly in previous columns, but I don’t think I have shared just how much PH impacts us as a family. No matter…
Gaining and losing weight is a part of life. In my 28 years, my weight has fluctuated for several reasons, including puberty, hormones, dietary changes, and acute illness. During these weight shifts, I accepted that it was just how my body was at…
Over the past decade, my son and our family have been through an intense journey from pulmonary hypertension (PH) to transplant. Most of the big, scary, sad, joyful, and incredible moments were squeezed into the past 10 years. Cullen was two years into his diagnosis when the world ushered in…
“I don’t have a choice, but he does. He doesn’t have to choose this type of life.” I said this to my mom with tears in my eyes just before my bypass surgery four years ago. At the time, I had been in a…
If you are like me, trying to balance life with pulmonary hypertension (PH) and coexisting illnesses is a full-time job. Add in the busy holiday season, and despite careful planning, I am left with a general feeling of malaise and lethargy. Though I don’t host any holiday celebrations at…
I recently read that the World Health Organization has declared 2020 as the Year of the Nurse and the Midwife. In honor of the 200th anniversary of Florence Nightingale’s birth, I hope you feel inspired to unite with people around the globe by celebrating, thanking, and supporting nurses.
Happy New Year, y’all. Do you remember the old saying, “As we get older, the years fly by”? For some reason, 2019 did exactly that. A new year creates the opportunity to reflect on the past and prepare for the future. As I ponder, I think about the positives and…
I have spent the majority of my 28 years suppressing my emotions. I had this idea that strength meant not letting my true feelings show. I fooled a lot of people with my smile and the way I seemed to handle life’s stressors with ease.
Maintaining a healthy diet while living with pulmonary hypertension (PH) can be complicated. When you’re already dealing with exhaustion, cooking is the last thing you want to think about. If you are living with other coexisting diseases, it becomes even more challenging. Nourishing your body is an issue due to…
In my previous column, I encouraged those who are celebrating Christmas to gift themselves with the feeling of peace this holiday season. However, you don’t have to be a Christian to welcome peace into your life, and everyone can practice goodwill. If you are living with pulmonary hypertension (PH),…
Recent Posts
- New Phase 3 trial data show ralinepag met main goal in PAH treatment
- Deal worth nearly $1B gets GSK potential best-in-class PH treatment
- How I transitioned from an IV therapy pump to oral meds
- Phaware debuts Heart Works app to empower the global PH community
- Joy trumps grief as my mom embarks on a rare trip
