Columns

“Is there any chance you are pregnant?”  Unfortunately, I have had to answer this question more times than I would like to count. Usually, I can think of some witty reply in the moment, along the lines of, “You would need to get the news team…

Managing pulmonary hypertension (PH) can be exhausting. Adding coexisting conditions makes it even more challenging. Like me, many people struggle to manage multiple illnesses. In addition to PH, I deal with chronic kidney disease (CKD), iron deficiency anemia, and a few others. It can be overwhelming. Some say…

After I was diagnosed with pulmonary hypertension (PH), I was so scared of doing any further damage to my heart that I stopped exercising altogether. I even gave up cycling, which was my main way of getting around. I spent a lot of time in bed and led a…

My son Cullen was excited to tell me he’d made a friend on his first day of kindergarten. Fifteen years later, he and Keenan remain best friends. Cullen’s battle with pulmonary hypertension (PH) might have challenged their friendship, but it never came close to impacting their bond. Cullen was…

For the first 18 years of my life, I rarely thought about my weight. I was active, enjoyed playing sports, and had a muscular, athletic build. My body type changed when I was going through many difficult symptoms associated with my pulmonary hypertension (PH) and…

The number of devastating natural disasters has increased significantly in the past several years. These billion-dollar disasters strike some states repeatedly. Therefore, residents in those areas realize the importance of preparedness. I stay on alert because I live on Texas’ Gulf Coast. I also live with pulmonary hypertension (PH)…

Welcome to Ellie Bird’s “Chronically Uncool,” a new Pulmonary Hypertension News column. When I was at university, I had a boyfriend who was obsessed with fitness. I had always been a very active person — I particularly liked to swim — but I had never been much of a gym bunny.

My son was 8 years old when he was diagnosed with pulmonary hypertension (PH). Children are supposed to be nurtured, but the attention showered on a child living with a life-threatening disease can begin to feel smothering. For the five years my son battled PH, I greeted him each…

Pulmonary hypertension (PH) is a complicated disease. I am the first to admit that. I live in the mountains and the valleys of PH life daily, and often I am thrown curveballs. While it is understandable that others around me cannot comprehend the impact PH has on my body, dealing…

Sitting in a hospital room for the past few days has given me a lot of time to think. When my mind wanders, it could be good, leading to self-reflection, or it can heighten my anxiety and worsen my depression. Over the past 24 hours,…

I can’t recall a time in my life when I didn’t have scars to show. Growing up with congenital heart disease left me with scars from drainage tubes and open-heart surgery, and cutdown scars from catheters and IV placements. I was always told to “love my scars”…

Surviving day in and day out with a life-threatening illness like pulmonary hypertension (PH), well, simply sucks. My struggles with numerous symptoms and medication side effects weigh me down and rapidly deplete me. Uptravi (selexipag) and Revatio (sildenafil) can cause horrific side effects, and these are my two primary…