I get anxious just thinking about what it’s like sitting in a waiting room at a doctor’s office. In waiting rooms, I pretend to keep myself occupied and distracted with just about anything. I mindlessly flip through hundreds of pictures on Pinterest or “read” the celebrity news from…
Black-and-white thinking is something that I have mastered for the majority of my life. In the psychology world, the term for this type of thinking is called “splitting.” According to Psychology Today, it is defined as “the division or polarization of…
President’s Day weekend was supposed to be monumental. I intended to write a feel-good column about coming full circle. It was my first time skiing post-transplant in the mountains around Lake Tahoe. Nineteen years ago, my family planned to go to our good friends’…
My repeated hospitalization cycle since November has tested my physical and mental strength. When pain, fatigue, depression, and anxiety fill my thoughts, it is hard to see the positive. While in the hospital, a transition to a double-occupancy room restored my strength.
My support systems provide me with courage, sympathy, and compassion and help me to persevere in difficult moments. A large part of my support comes from an online community called the Pulmonary Hypertension News Forums. The PH News Forums have allowed me to…
The night before my heart-lung transplant, I was in my high school art studio working on an oil painting. I had started painting to pass the time while waiting for the call, and I returned to the comfort of Mr. Miller’s…
“I’m sorry you have to take these days out of work.” “I’m sorry for not being able to spend a lot of time with you.” “I’m sorry this has been so hard for me.” “I’m sorry for…
I am particularly sensitive to feeling left out of activities with friends. This started when I was a young, sick kid. I walked at the very end of the group while a day camp counselor scolded me for not keeping pace. After my pulmonary hypertension (PH)…
Pulmonary hypertension is unpredictable in countless ways. I experience noticeable health changes throughout each day, from one hour to the next. Pulmonary hypertension has impacted the way I breathe and the amount of daily exertion for the things I love doing. Recently, it has harmed my weight…
2018 was triumphant. I accomplished several of my long-term goals. I had zero organ rejection, so I remained on my lowest dose of prednisone all year, and that meant less brain fog, more stable moods, and fewer panic attacks. Though I frequently worried about my…
When I was younger, the holiday season was all about happiness and excitement. But each year, as I got older, it seemed as if the “magic” of the holiday season started to fade. For those with a chronic illness such as pulmonary hypertension…
“Hopefully we won’t see you back here any time soon!” “Let’s hope not!” This was the conversation between my nurse and me as I walked out of the hospital after a nine-day stay. The nurse and hospital staff saw me walking…
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