It is difficult to admit defeat. It is even more of a challenge to acknowledge something as a loss. Living with chronic illness and pulmonary hypertension, I’ve felt defeated many times in my life. Sometimes, I failed to pay attention to the…
Columns
Living with pulmonary hypertension (PH) for the past 14 years has been a challenge, to say the least. Along this journey, an important relationship for me has been with my PH specialist. I started out with a few different doctors before finding an actual PH specialist who “vibes” with…
Due to pulmonary hypertension (PH), my son was on the transplant list for almost a year when he received the call that a heart and lungs were available. We were prepared for an out-of-state transplant, with packed suitcases by the door and two different med flights on speed dial.
When my husband and I said our vows, “To have and to hold … in sickness and in health,” we had no idea to what extent that promise would be tested. Our child’s diagnosis with pulmonary hypertension (PH) was like an earthquake shaking the foundation of our marriage and…
Welcome to Jen Cueva’s “Worth the PHight,” a new Pulmonary Hypertension News Today column. Hey, y’all! I am happy to be here writing this column, and I hope it will help others out there who are PHighting this same PHight. Living with pulmonary hypertension (PH) for the last 14…
My son’s pulmonary arterial hypertension (PAH) was idiopathic, which means it developed suddenly with no known cause. He was healthy until he became symptomatic at 6 years old. Before then, we only brought him to the doctor for checkups and the occasional ear infection. He was an early walker…
Life with chronic illness is not easy. My days are unpredictable, and I often feel unsure and uneasy about what lies ahead. Some days I feel productive and physically able, and I have sufficient energy for the things I want to accomplish. At other times, I feel completely…
I wish I had a dollar for every time I’ve been described as strong, but what if people knew my weaknesses, unfathomable sadness, and heartbreaking mistakes? As a caregiver to my son, I’ve had to accept his reality and mine. I’m not a pillar of strength or perfect in what…
In the last few months, I have spent more time in the hospital than at home. When I am discharged, I feel the anxiety that is normal for me after a hospital stay. After a few days of being home, I begin to feel relief…
I struggled with the title for my column because what I write about will be from my perspective as caregiver to my son. However, using the word “caregiver” was bothering me because who I am above all else is his mom. When someone refers to me as a caregiver, it…
A month ago, I wasn’t sure when I would be writing again. I wrote my last column prior to a life-changing surgery, hoping that it wouldn’t be my last post. Three weeks ago, I was heading into the biggest surgery I can remember having.
My pain levels vary. Some days I feel “OK,” and I can go outside and enjoy myself. At other times, my pain levels are higher, and any activity leaves my body screaming by day’s end. I have moments when the pain becomes all-consuming.
