Columns

PH Profiles: Miriam

November is Pulmonary Hypertension (PH) Awareness Month. In honor of PH Awareness Month, I will be sharing patient profiles about special members from the PH community. Please be sure to visit throughout the month of November to read more PH profiles.  Miriam Katherine is a…

Phaware Podcast: Vic Tapson, MD

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

Peeling Back the Layers of Chronic Illness

On a recent rainy fall day in Washington, D.C., you could find me in my small kitchen apartment cooking up a hearty beef stew. I prepped all the vegetables — the carrots, the celery, the potatoes, and the onions. It was after I started peeling an onion and…

Phaware Podcast: Connie Sherwood, CN

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it via…

On the Importance of Being Transparent

Cackling, my classmates point at my face. “You look like a ghost!” one sneers. Confused, with no access to a mirror, I ignore their taunting and turn back to my work. When I feel the nausea creeping through me, I know something is wrong. Instinctively, I…

PH Profiles: Carolyn Marthur

November is Pulmonary Hypertension (PH) Awareness Month. In honor of PH Awareness Month, I will be sharing patient profiles about special members from the PH community. Please be sure to visit throughout the month of November to read more PH profiles.  Carolyn…

Phaware Podcast: John Hess

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

The Many Ways Anxiety Showed Up in My Life with PH

Several factors caused me to develop anxiety. They include the trauma of surgeries for my congenital heart conditions that contributed to pulmonary hypertension, the fear of not knowing what was coming next, and failing to trust those who I should have depended on for protection.

Why I PHight: Raising Awareness This November

Did you know that I have a new appreciation for street corners? I remember when I would attempt to cross the street as a red No. 2 flashed into a blinking hand, and my foot would touch down on the opposite curb just as a car flew by.

Phaware Podcast: Tim Smith

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

Bringing Discussions of Illness Into the Open

I bought into the whole, “invisible illness/disability” thing until my condition became visible, but even less recognizable. Outside the clinical environment, few people guess that I am wearing a mask because I recently had a transplant. More common assumptions are that I have allergies,…


A Conversation With Rare Disease Advocates