Columns

Aware, Rare, and Advocating for PH Year-Round

The other night I sat in my small living room as an episode of “The West Wing” played in the background. I probably was writing something or other, not giving the show my full attention. You should know that I have seen the series through and through…

Phaware Podcast: Marc Humbert, MD

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

My Love Affair with Food

Like others in my life, my relationship to food has changed drastically since my heart-lung transplant. Food is so important to me that I once listed it as a main source of happiness in my life (during a rough period in high school). Surprisingly,…

PH Profiles: Tegan

November is Pulmonary Hypertension (PH) Awareness Month. In honor of PH Awareness Month, I will be sharing patient profiles about special members of the PH community. Please be sure to visit throughout the month of November to read more PH profiles. Tegan…

Phaware Podcast: Guillermo Young, MD

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

Phaware Podcast: Tamara Norton, CCN

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

Illness Teaches Gratitude

My friend Rachael got married last month, something neither of us believed she would live to do when we first met at a summer camp for kids with heart disease. At Rachael and Jake’s rehearsal dinner, there was a lot of talk of what…

PH Profiles: Nicole McClelland

November is Pulmonary Hypertension (PH) Awareness Month. In honor of PH Awareness Month, I will be sharing patient profiles about special members from the PH community. Please be sure to visit throughout the month of November to read more PH profiles.  Nicole McClelland,…

Phaware Podcast: Steve Mathai, MD (Part 2)

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…

The Battle of the Brain Fog

“So, how was your Halloween!?” I asked the two children I nanny, as they were telling me about their day at school. With laughter, they replied, “Britt, we already told you about Halloween. We looked through the candy and organized…

Phaware Podcast: Steve Mathai, MD (Part 1)

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…


A Conversation With Rare Disease Advocates