When I was in college and my health was in decline with pulmonary hypertension, I had a month when my symptoms became exacerbated. That led to a week of things becoming noticeably worse, which led to a day of increasing worry. By 9 at night, I felt I had…
Columns
Music is a universal gift given and received by people of all ages, ethnicities, and cultures. Its versatile melodies, rhythms, harmonies, lyrics, and instruments adapt to any person, place, situation, mood, and event. Music is the keeper of memories, the creator of dreams, and the healer of mind, body, and…
People often ask me, “How can you be so grateful while living with pulmonary hypertension (PH)?” Little do they know that gratitude is a go-to practice for me. If you’ve read my past columns, you’ll know the topic comes up frequently. As Thanksgiving approaches, many start reflecting…
My 25-year-old son Cullen has been trying to deal with trying situations since he was a child. For years he explained to both his parents and medical professionals that something more than asthma or anxiety was making it difficult for him to physically keep up with his friends. A correct…
Last October, I had an annual checkup with my OB-GYN, where I renewed my birth control prescription, which helps to control excessive bleeding in my uterus. This is vital for me because my hemoglobin levels are consistently low due to chronic kidney disease, and I can’t afford regular blood loss.
It’s been a while. Do you remember me? I fell silent in June 2023 after sharing a column titled “How I am coping since my husband passed away.” I’m an only child to aging parents, Mom, 86, and Dad, 94. When my husband, Brian Steele, died, I moved to…
As the holidays draw near, it’s also time to shine a spotlight on education, awareness, and advocacy for pulmonary hypertension (PH). PH has been a cause that’s close to my heart for nearly two decades. PH Awareness Month in November is a perfect opportunity to educate others about…
All my Halloween nights were the same when I was growing up. First, my parents would bring me and my siblings to our family friend’s house, where we consumed sloppy Joes and Jell-O jigglers. Then the kids would disperse to various homes on the street to begin the festivities.
“The flower that blooms in adversity is the most rare and beautiful of all.” — Disney’s “Mulan” Being diagnosed with pulmonary hypertension (PH) is a daunting experience, like stepping into uncharted territory without a map. Unlike more common conditions, there’s no simple guidebook for navigating this rare disease.
At the start of the month, I embarked once again on something called the “Inktober” challenge. Created by artist Jake Parker, Inktober invites participants to make one piece of art per day during the 31 days of October. I’ve written previously about why I like to participate in…
Living with a rare or chronic disease is never easy, as it creates many emotional, financial, physical, and social challenges. One difficult aspect is learning that a particular condition has progressed. How are we supposed to cope with news that our health is getting worse? I face this unfortunate…
I grew up in Minnesota, the “Land of 10,000 Lakes.” In fact, my childhood home was located on one of the largest lakes in the state. The summers in our lake town centered on water activities, from tubing behind a boat to deep dives off the dock. Being in the…
