Columns

Why unconventional symptom relief has helped me

This column describes the author’s own experiences with some prescription and over-the-counter drugs. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. When I was in college, I always had a Ricola cough drop on hand. They littered my…

Shed your leaves and let go of what no longer serves you

Fall has always been my favorite season. Unfortunately, San Diego doesn’t quite have the enchanting fall foliage that other places do. Instead of a vibrant cascade of leaves, it’s more like a few scattered ones and a whimsical dance of pollen floating through the air. That mix mingles here with…

3 ways to show someone with health challenges that you care

When I was 3 years old, my family temporarily moved to Michigan because of my dad’s work. A year later, while we were still there, I was diagnosed with pulmonary hypertension (PH). It was overwhelming to receive such life-changing news at a time when we were removed from family,…

Ways I help my husband and caregiver prioritize self-care

Did you know? According to the National Institutes of Health, millions of Americans each year selflessly provide unpaid care for loved ones with chronic or severe health conditions like pulmonary hypertension (PH). These remarkable individuals dedicate countless hours to assisting others — and we can’t overlook the toll…

Could my brain fog and cognitive decline be linked to my PH?

“How are your focus and concentration? Do you need help to stay engaged while reading, writing your columns, or watching movies?” These were the questions my psychiatrist posed to me during our recent telehealth session. Surprisingly, she linked my attention-deficit/hyperactivity disorder to long-term COVID-19. But she reminded me…

Accepting that life with PAH is a marathon, not a sprint

Pulmonary arterial hypertension (PAH) isn’t a one-size-fits-all disease. Each patient’s diagnostic journey and treatment protocol look different, and the condition’s complexity and severity will vary for everyone. For my husband, Tim, the PAH journey has been long, resulting in an array of medical issues, including…

Another doctor appointment, but with unexpected good news

It’s not often that pulmonary arterial hypertension (PAH) patients enter a visit with their physician and hear what they want to hear. Many times for my husband, Tim, visits have been a gross reminder of his condition and how limiting it can be. A typical, predictable rundown: check-in, vital…

Reflecting with gratitude on my 5-year transplant anniversary

The years since my heart-lung transplant due to pulmonary hypertension have passed with fluctuating clarity. Some seasons have been rapid or insignificant, blurring one into another. Others remain in my mind, fixed in sharp definition — as if a part of me is still arrested in those moments.


A Conversation With Rare Disease Advocates