“Can we celebrate instead, please?” crossed my mind as my doctor discussed the results of my most recent right heart catheter. He showed me a chart that was sort of like a stoplight. The chart had green, yellow, and red markers. Red is an indication…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
There is an inner dialogue that often goes on in the mind of someone who is chronically ill when asking for help. Ultimately, the outcomes of these inner conflicts are feelings of guilt, shame, and uselessness. It is hard to break out of this…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to…
There are two things I have wanted all of my life: A drum kit and a dog. The drum kit never really panned out because they are ginormous, expensive, and loud. I tried getting my hands on several other musical instruments instead, but as a professional…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
The five stages of grief were first proposed by Elisabeth Kübler-Ross in her 1969 book “On Death and Dying.” Mourning the loss of your health is similar to mourning the loss of a loved one. We are faced with…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly,…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…
Emotions. I’ve been struggling to come up with an idea for this column. Or rather, I’ve been struggling to narrow it down to one idea. My thoughts lately have been jumbled and scattered. I’ve been jumpy and anxious. So, this will focus on lots of emotions. Guilt.
I’ve previously discussed the moment that a pulmonary hypertension (PH) specialist waltzed into an examination room and slapped an expiration date on my back like a carton of milk. Unfortunately, this day  probably will be etched in my mind forever. I was so dumbfounded that I…
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