Columns

Saying No, for Now, to Being a Parent with PH

I was diagnosed with pulmonary hypertension on the cusp of my adult life gaining its sea legs. After working a lot of crummy jobs while a university student, I had landed my first adult job with good pay and even better benefits. This was no small feat, because I went to…

Pulmonary Hypertension and ‘The Spoon Theory’

Do you know what the Spoon Theory is? Have any of your friends called themselves a Spoonie? I didn’t know what the Spoon Theory was until a few months after I was diagnosed with pulmonary hypertension. I found out that I was Spoonie after reading more about the theory. If…

Who Should Raise Awareness for Pulmonary Hypertension?

In pulmonary hypertension expert and blogger Serena Lawrence’s first post for Pulmonary Hypertension News, she introduces herself and begins to explore the themes of her new blog column, “Life With PH.” Every pulmonary hypertension patient’s story is unique, but Serena’s column seeks to share stories and perspectives that unite the PH…


A Conversation With Rare Disease Advocates