Worth the PHight - a Column by Jen Cueva

workplace, fear, interview, less is more, unique, covid-19 Jen is a columnist and forum moderator for Pulmonary Hypertension News Today. Jen worked in nursing before the script changed upon her diagnosis of PH in 2005. Advocating and meeting those with PH has always been an essential part of her life. Her passion is to instill hope and remind others in the PH community that they are not alone. In her weekly column, she delves into the roller coaster of emotions that come along with PH. Having this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey is meaningful and powerful for her. Jen lives in Southern California with her husband. Together, we PHight stronger.

A PHriend shares her journey to becoming a patient advocate

Managing pulmonary hypertension (PH) for 20 years has not only shaped my life, but it’s also allowed me to connect deeply with a resilient and inspiring community. Over the years, I’ve witnessed firsthand the strength of patients and caregivers who come together to support one another, champion awareness, and…

How GLP-1 agonist medications changed one PHriend’s life

Note: This column describes one woman’s experiences with GLP-1 agonist medications. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Living with pulmonary hypertension (PH) is a daily challenge that can strip away independence, mobility, and confidence. But for…

Now, more than ever, we must unite for our future

Recent news headlines have sparked significant concern among those of us in the pulmonary hypertension (PH) and other rare disease communities. The massive budget and staff cuts across multiple federal agencies are particularly troubling, prompting a flurry of conversations both online and in private. As we navigate these challenging…

When PH causes me conflicting emotions, acceptance is key

In addition to physical challenges, living with a complex condition like pulmonary hypertension (PH) also means fighting mental and emotional battles. I constantly feel a push and pull between frustration and gratitude. But these are moments that can teach me a lot about myself and the people I love.

How to deal with setbacks while managing PH

This time of year can feel heavy as many of us start reflecting on resolutions or goals we haven’t yet fulfilled. Maybe you promised yourself you’d eat a healthier diet or get more sleep, but life had other plans. It happens to the best of us. For those in the…

How I struggle to manage chronic pain during the holidays

Are you managing chronic pain alongside pulmonary hypertension (PH)? Did it disrupt your holiday plans? If you answered yes, you’re not alone. Many folks in the PH and broader rare disease communities share similar frustrations with having to adjust plans because of unrelenting pain. Dealing with chronic pain…

There are so many things to be thankful for, even with PH

People often ask me, “How can you be so grateful while living with pulmonary hypertension (PH)?” Little do they know that gratitude is a go-to practice for me. If you’ve read my past columns, you’ll know the topic comes up frequently. As Thanksgiving approaches, many start reflecting…

Rare disease advocacy is a year-round endeavor for me

As the holidays draw near, it’s also time to shine a spotlight on education, awareness, and advocacy for pulmonary hypertension (PH). PH has been a cause that’s close to my heart for nearly two decades. PH Awareness Month in November is a perfect opportunity to educate others about…