Have you ever held back from sharing good news about your health, fearing it might diminish other people’s struggles or come across as bragging? This sentiment may resonate for many of us with pulmonary hypertension (PH), but celebrating our victories is a powerful way to raise awareness about this…
Worth the PHight - a Column by Jen Cueva
“Acceptance doesn’t mean resignation; it means understanding that something is what it is and that there’s got to be a way through it.” — Michael J. Fox For over 10 years, I’ve been navigating life with chronic pain, a silent battle I’ve fought while managing pulmonary hypertension (PH) and…
A recent e-bike ride I took with my husband, Manny, was quite the learning experience. What began as a pleasant afternoon quickly reminded us of the importance of heat safety, especially for those of us managing pulmonary hypertension (PH). We had enjoyed a light lunch and a couple of…
“Why am I so tired all the time?” If you’ve ever thought that while managing your pulmonary hypertension (PH), you’re not alone. Fatigue is a well-known PH symptom that often goes unaddressed. In my experience, sleep plays a factor in my fatigue levels. Despite getting what I thought was…
Hormone replacement therapy is often used to manage symptoms of menopause, but for those of us with conditions like pulmonary hypertension (PH) and congestive heart failure, it’s not so simple. The risks of hormone replacement therapy potentially worsening our fragile cardiovascular and renal systems make it a no-go for…
Managing pulmonary hypertension (PH) for 20 years has not only shaped my life, but it’s also allowed me to connect deeply with a resilient and inspiring community. Over the years, I’ve witnessed firsthand the strength of patients and caregivers who come together to support one another, champion awareness, and…
You may have noticed that I haven’t been writing much in the past few months. That’s because I recently suffered a fall at home that was unrelated to my pulmonary hypertension (PH). Rather, it happened because of my clumsiness as I tried to tackle my to-do list. The fall…
Note: This column describes one woman’s experiences with GLP-1 agonist medications. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Living with pulmonary hypertension (PH) is a daily challenge that can strip away independence, mobility, and confidence. But for…
We can be tempted to push ourselves when we’re feeling OK and having a not-so-bad day with pulmonary hypertension (PH). Plans with family, weekends packed with activities, or even the excitement of feeling better than usual can make us want to do it all. But those of us with…
Recent news headlines have sparked significant concern among those of us in the pulmonary hypertension (PH) and other rare disease communities. The massive budget and staff cuts across multiple federal agencies are particularly troubling, prompting a flurry of conversations both online and in private. As we navigate these challenging…
In addition to physical challenges, living with a complex condition like pulmonary hypertension (PH) also means fighting mental and emotional battles. I constantly feel a push and pull between frustration and gratitude. But these are moments that can teach me a lot about myself and the people I love.
This time of year can feel heavy as many of us start reflecting on resolutions or goals we haven’t yet fulfilled. Maybe you promised yourself you’d eat a healthier diet or get more sleep, but life had other plans. It happens to the best of us. For those in the…
