Worth the PHight - a Column by Jen Cueva

workplace, fear, interview, less is more, unique, covid-19
Jen is a columnist and forum moderator for PH News Today. Jen worked in nursing before the script changed upon her diagnosis of PH in 2005. Advocating and meeting those with PH has always been an essential part of her life. Her passion is to instill hope and remind others in the PH community that they are not alone. In her weekly column, she delves into the roller coaster of emotions that come along with PH. Jen lives on the Texas Gulf Coast with her husband and mini-schnauzer. Together we PHight stronger.

Opening Up About My Struggles with Mental Health

If you have found yourself standing in a warm shower as tears stream down your face, you are not alone. It is no secret that living with a rare disease like pulmonary hypertension affects one’s mental health. Although I have touched on this topic before, I want to devote this…

Celebrating World PH Day and National Nurses Week

When you hear May 5, do you smell warm chips and salsa? Or taste a tangy margarita? Most of us probably think about Cinco de Mayo. No judgment. I, too, typically enjoy Cinco de Mayo by celebrating at a favorite Mexican restaurant. But on May 5, the pulmonary hypertension community…

Can I Have a Bit of Normalcy Without Fear?

“I have watched fear change us. I have watched fear ride roughshod over our families, organizations, and communities.” – Brené Brown, “Braving The Wilderness.”  In the above quote, lecturer Brené Brown was speaking about fear after 9/11. Lately, we are again learning to live in fear. We are…

PH Has Changed Me in Profound Ways

I often hear that I’ve changed since my pulmonary hypertension diagnosis. I constantly speculate about whether this might be true, and then repeatedly realize it’s pretty accurate. Surviving every day with a rare and life-threatening disease like PH takes a toll not only on my body, but also my…

I’m Starting to Lose It with Social Distancing

Have y’all had times during this self-quarantine when you’ve lost it? If so, you’re not alone. Last week, my husband was home from work all week. He was feeling achy and had chills for several days, which was far from normal. Thankfully, he did not have a high fever. But…

Dealing with Anxiety Caused By Life’s Uncertainties

Life is full of the unexpected, the unknowns, and uncertainty. This is no secret. My pulmonary hypertension diagnosis was unquestionably one of my toughest unknowns. Unknowns also may include a job loss, the loss of a family member or friend, and a variety of other life events. I often deal…

Staying Positive During a Global Pandemic

As I write this, I am watching the news. Shocker, right? As of the writing of this column, 63 cases of COVID-19 have been reported in the greater Houston area, although that number undoubtedly will increase. Life has been full of unknowns, especially in recent weeks. It is overwhelming…

Why Is It so Difficult to Take Time to Pause?

Life is hectic, wouldn’t you agree? Some days I find myself overwhelmed from living with pulmonary hypertension and other coexisting medical issues. More days than not, I am inundated with emotions. But anyone living in today’s busy world can feel this way, too. We are often told how to…