“You look so good.” “What’s wrong with you now?” “But you’re too young to be on oxygen.” “Wow, you don’t look sick at all.” “But you went out last night.” If I had to guess, I’d bet that…
Worth the PHight - a Column by Jen Cueva
The song “In My Daughter’s Eyes” by Martina McBride hits me heavy every time I hear it. I always dedicate this song to my daughter, Kayla. If only I could see myself in my daughter’s eyes. As a mom, I have always loved my daughter beyond measure, and…
According to the Anxiety and Depression Association of America, nearly 40 million people in the United States experience an anxiety disorder in any given year. If you have pulmonary hypertension (PH) and anxiety, you already know this struggle. Anxiety affects us in more ways than we ever thought possible.
“When thunder rolls through my life, Will you be able to weather the storm? There’s so much I would give ya, baby.” While these lyrics to Pink’s “Love Song” aren’t about chronic illness, they remind me of the roller coasters we encounter in our lives. I am…
Since my recent hospitalization, I am not allowed to drive for a while. This may seem like no big deal to some, but for me, driving is my little bit of freedom; it’s my independence. Usually, I only drive for small distances near my house. Some days, this is…
“Life is tough, my darling, but so are you.” – Stephanie Bennett-Henry My husband pushed me in my wheelchair through the main hospital entrance. My pulmonary hypertension (PH) medical team wanted me to avoid chaos in the emergency room. I am grateful that he made my health…
“Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.” – Matthew 6:34 I’m noticing that my pulmonary hypertension symptoms are raging throughout my body. For those who are unaware, stress can exacerbate PH and its symptoms. For…
If I asked you which three words you find most difficult, how would you answer? Some may say, “I love you.“ Others may say, “there’s no cure.” But “I need help” are the three most difficult words for me to say, maybe because I’ve never been one to ask…
As a child, I enjoyed writing. My Moma always reminds me of the “I’m sorry” letters I wrote when I did something wrong. Writing cards and notes and mailing them is something I have always enjoyed. Once my parents divorced, we moved around often. This made it difficult for me.
I attempt to take a deep breath, but tightness squeezes my chest. Pain follows, as if someone is crushing not only my lungs but my ribs, too. I woke up the Friday before Memorial Day to this overwhelming yet familiar scenario. Because of pulmonary hypertension (PH), I also battle…
Have you ever walked in the door and immediately been greeted by your fur baby? If so, you know how good it feels to have been missed — even if you’re greeted with sloppy kisses and a hyperactive bouncy dog. Mine often gets twisted up in my oxygen tubing as…
In life, we often try to control things by trying to predict the future. But no matter how hard we try, we are not in control. There is only one person in charge: God. Living with a rare disease like pulmonary hypertension (PH), I relinquish that control more often…
