What turns a house into a home? My therapist posed this question during a recent session. Initially caught off guard, I found myself pondering its depth. Eventually, I realized it was an exploration worth undertaking. So here I am, eager to dive into the exercise and share my thoughts. You…
Worth the PHight - a Column by Jen Cueva
When the late afternoon rolls around and I’m ready to wind down, my body often has other plans. These moments seem to bring out the worst of my pain, and I find myself curled up in a fetal position on the couch. Yet, I’m hesitant to take pain medication…
To the lady who glared at me and muttered under her breath as I pulled into a disabled parking spot: Why not approach me and ask me why I parked there? I’d gladly explain that I have pulmonary hypertension (PH), a rare and progressive disease that affects my heart…
Have you ever wondered why some people openly share their health struggles while others keep them to themselves? Before jumping to conclusions and assuming it’s all about seeking attention, let’s take a moment to reflect. Speaking up about my chronic illness journey with pulmonary hypertension (PH) has given…
It’s 7 p.m. on a Thursday, and my husband, Manny, and I are cooking dinner. Suddenly, my phone rings. Manny looks concerned and says, “It’s the nephrologist.” I already have a gut feeling it won’t be good news. My bloodwork has been all over the place the past few…
Over the past few months, I’ve asked myself several times if I’ve become a better or worse friend, but I didn’t know the answer. When pulmonary hypertension (PH) makes me feel my worst, I worry I’m a bad friend. I can’t spend as much time with people as I’d…
Picture yourself sitting in a waiting room at the doctor’s office, playing the waiting game. You’ve all been there, of course. How do you determine how long is too long to wait? Your answers, unsurprisingly, may vary. In an informal survey, I asked 15 people with pulmonary hypertension (PH)…
Pulmonary hypertension (PH) manifests and affects us each differently, adding to the complexity and mystery of the disease. Let’s continue to support each other, even as we acknowledge that our journeys are unique. In doing so, we can bring awareness and relief to others with PH. No matter where…
Do you find yourself constantly apologizing for being sick? Do you also neglect to share on social media your feel-good days or your progress to avoid upsetting others in the pulmonary hypertension (PH) community? Take a moment to track how often you hold back this way over a week.
Managing life with pulmonary hypertension (PH) and other illnesses can be overwhelming. Juggling appointments, procedures, pharmacy visits, and insurance calls leaves little time to focus on feeling well. Chronic pain, PH symptoms, and medication side effects can also affect my quality of life. Since I was…
Throughout my 18-year journey with pulmonary hypertension (PH), I’ve unfortunately had many experiences where doctors have brushed off my symptoms. I was once admitted to an intensive care unit where healthcare providers dismissed my hyponatremia, or low sodium levels, assuming it was simply a side effect…
All people encounter daily concerns and stresses that affect their mental well-being. Although commonplace stressors are inevitable, they can become overwhelming and lead to emotional upheaval when not managed well. The pulmonary hypertension (PH) community faces these everyday worries, plus the added stress that a rare disease brings.
