Pulmonary Hypertension News Forums › Forums › PH Care and Treatment › Diagnosis Information and General Questions › Surgery for CTEPH
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Surgery for CTEPH
Posted by Robin Frankel on June 12, 2018 at 7:58 pmI’m wondering if anyone has had a pulmonary thromboendoarterectomy? Trying to get approval
Robin Frankel replied 5 years, 10 months ago 2 Members · 4 Replies -
4 Replies
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I have CTEPH also but am not eligible. Good luck. Are you on Facebook? There are several groups/pages on there that deal with the PTE surgery. HUGS!
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Hi, Beverly, I am not approved yet. I may have too much small vessel disease, the disease may be too extensive in general, or I may have an inherited the disease. My info is being sent to UC San Diego. Thank you for replying, but may I ask what ruled you out?
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For one thing, my weight. I’m working on that. The second is I think my pulmonologist said the clot residue was too far down to remove. But since I’m scared of surgery anyway, it was OK by me! LOL!
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