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Who is your advocate when you find it hard to advocate for yourself?
Sometimes, my emotions can get in the way of letting people know exactly the kind of help that I need. In the moments when I feel a lot of frustration, sadness, and anger, I have a hard time communicating and advocating for myself and expressing what would be helpful. Usually in these moments, I rely on others to help me by bringing me to a head space where I feel calmer and can think more clearly. Sometimes I also need that person to be my advocate for me, make phone calls, send emails, get in touch with pharmacy staff or doctors etc. Sometimes managing all of that on my own can feel like just too much.
Luckily I have people in my life to help me advocate and who will take over the advocacy for me and my health needs. Usually I rely most on my mom (who has been through this with me since birth) , my friends who have also gone through similar struggles and just “get it” and understand the frustration, or the medical professionals and therapists in my life who I trust. I am grateful to have support systems in my life to help me advocate for myself.
When your find it hard or overwhelming to advocate for yourself, who usually helps you? What is most helpful for someone to know who is trying to advocate for you? What does your advocate do that makes things easier for you?
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