Awareness and Advocacy

This forum has 74 topics, 456 replies, and was last updated 2 weeks, 5 days ago by Jen Cueva.

Viewing 17 topics - 1 through 15 (of 76 total)

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- Topic
- Voices
- Posts
- Last Post
- Welcome -new sub-forum
  Started by: Jen Cueva in: Welcome!
- 1
- 3
- 4 months, 2 weeks ago
  Jen Cueva
- Forum Rules and Posting Guidelines
  Started by: Joe Pierce in: Using our Forums
- 7
- 10
- 4 months, 2 weeks ago
  Jen Cueva
- Protect Yourself From Wildfire Smoke
  Started by: Kathleen Sheffer
- 8
- 18
- 1 week, 6 days ago
  Gayle Ward
- What Are Your Thoughts on the Right To Try Act?
  Started by: Jen Cueva
- 2
- 3
- 2 weeks, 4 days ago
  Jen Cueva
- Let’s Talk About Medication Compliance
  Started by: Colleen Steele
- 3
- 8
- 2 weeks, 6 days ago
  Jen Cueva
- News Streaming Channel Showcases Rare Diseases
  Started by: Jen Cueva
- 2
- 3
- 1 month, 2 weeks ago
  Jen Cueva
- How Do Non-PHer’s Advocate For Themselves?
  Started by: Colleen Steele
- 4
- 8
- 2 months ago
  Colleen Steele
- Have You Argued With A Doctor Or Nurse?
  Started by: Colleen Steele
- 1
- 2
- 2 months, 3 weeks ago
  Colleen Steele
- Do You Take Mental Health Breaks From PH?
  Started by: Colleen Steele
- 3
- 11
- 4 months, 1 week ago
  Jen Cueva
- Has a Nurse Made You Feel Special? Share Your Stories With Us.
  Started by: Jen Cueva
- 5
- 17
- 4 months, 2 weeks ago
  Jen Cueva
- Were You Planning To Attend The PHA Conference In June?
  Started by: Jen Cueva
- 3
- 4
- 6 months ago
  Jen Cueva
- Do you have any clothes that help raise awareness?
  Started by: Brittany Foster
- 5
- 7
- 6 months, 2 weeks ago
  Brittany Foster
- My Discovery of PH and Awarness
  Started by: Mae
- 5
- 14
- 6 months, 3 weeks ago
  Brittany Foster
- Rare Disease Week On Capitol Hill
  Started by: Colleen Steele
- 2
- 3
- 7 months ago
  Colleen Steele
- Spread Awareness for rare disease by using #whatmakesmerareph
  Started by: Brittany Foster
- 5
- 12
- 7 months ago
  Brittany Foster
- Friendships Formed With People Living With A Different Rare Disease
  Started by: Colleen Steele
- 2
- 3
- 7 months, 1 week ago
  Colleen Steele
- Why Care About A Rare Disease That Doesn’t Affect You?
  Started by: Colleen Steele
- 5
- 11
- 7 months, 1 week ago
  Jen Cueva

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