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    • #32533

      This is Charlita Hayward’s story: Charlita lives in Bermuda, and has idiopathic pulmonary arterial hypertension (IPAH). She was diagnosed in August 2020.

      Charlita’s firstborn son died of PH when he was three and a half months old. Now 12 years later, she is dealing with her own diagnosis and praying it is not hereditary.

      Charlita got sick again at the end of January 2021 and spent a month in the hospital undergoing a right heart catheterization and starting treatments for IPAH. Charlita believes that no two days are the same when dealing with PH. She hopes for a cure and for Bermuda will have a PH clinic and more lung specialists to help patients like her.

      Charlita, you are one resilliant lady! We too hope for a cure!

      Now back to our PH Community. How is PH care where you live? Are there any specialist clinics near you?

      Charlita’s story is on our Instagram! Go check it out and do give us a follow so you don’t miss out on any #30DaysofPH stories. This community is simply incredible, and there are still many more stories to come! Stay with us x

    • #32556
      Colleen Steele
      Keymaster

      Charlita’s story brings up a concern among those diagnosed with PH – is it hereditary? My family went through testing which resulted in my son’s PAH being idiopathic. Has anyone else gone through testing to determine if your PH is hereditary?

    • #32584
      Jen Cueva
      Keymaster

      Wow, what a heart-tugging concern for Charlita! I have read that PH can be hereditary. I was not tested as my PH specialist did not believe that I didn’t need the test.

      I hope and pray that Bermuda gets some PH centers soon and many more are educated in that area about PH. Charlita, my thoughts and prayers are with you as you get some answers about your possible hereditary PH. Thank God you made it out with COVID; I can relate to that as I had it last year and was not expected to make it out.

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