-
Alternative Limb Project
This is kind of random, and might be a stretch, but…earlier today, a disability arts page I follow shared about Sophie de Oliveira Barata’s Alternative Limb Project. De Oliveira Barata designs custom prosthetics for amputees, and the art pieces are striking (10 images shown here).
One of her clients is Viktoria Modesta, who The Guardian names the world’s first amputee pop star. Read a quote from Modesta below:
“I’ve been asked if I feel I represent disability, and I don’t think I do,” she says. “I represent the feeling that you have a choice to create your own identity. It is more than just coming out as the first amputee music fashion artist, whatever you want to call it. It’s about taking charge of your own assets. If you don’t fit in, then don’t fit in.”
This is what I love about De Oliveira Barata’s work: she helps her clients decide how they present their bodies to the world. Rather than conceal their prosthetics, they draw attention to them in creative ways. I’ve seen @brittany-foster do the same with her oxygen tank. She decorates the e-tank and cart to coordinate with her outfits for special events (one example here). In the same way that these amputees have done, Brittany acknowledges her supplemental oxygen and controls how she relates to it.
When I started painting and drawing my infusion pump, as I wrote about in this column post, I came closer to accepting it. My disease and my treatment made me different. I used that to make art that helped me heal (and got me an A in the course).
What aspects of your disease are you struggling to accept? Do you have perceived (but not necessarily real) flaws you wish to conceal?
Have you tried any creative projects like those mentioned above? How do you work toward acknowledging the challenges you face?
Log in to reply.