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Anyone been diagnosed with Waldenstroms?
Hello everyone! I am in a state of shock and I just have to share my news and maybe some of you have some answers? I have recently started seeing a new Rheumatologist because my Interstitial Lung Disease and my PH are caused by Autoimmune Disease. Specifically, Sceladerma and Lupus. Well today I found out after running all kinds of blood work and new tests, I have a rare cancer called Waldenstroms?? How weird is that! I have never heard of it till today. It’s very rare. It’s basically bone marrow cancer. The good news is I can start treatment as soon as insurance approves everything. The doctor is hopeful that it will reverse my lung damage and possibly help my PH. All this time I have felt like death with bone pain and back pain. I can’t even walk most days! And I finally have a answer! It’s bitter sweet! Here I got diagnosed years ago with Autoimmune diseases and I never questioned it. Then this new doctor I thought was crazy ordering all these tests. And she probably has saved my life. Without treatment most don’t live long with this type of cancer. It just amazing how life can be such a roller coaster ride! I just want to walk and not have pain every single day.
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