Are You Struggling With Post-COVID Symptoms and PH?

[Jen Cueva]

For those of us with PH, adding COVID was challenging. If you had COVID and continue to PHight these not-so-fun symptoms, you are not alone.

I am about 8 months post-COVID, and my symptoms still linger. This week, my column is about my struggles are my post-COVID symptoms continue to take a toll on me.

Give it a read, and let’s talk about this. Do you continue to wrestles with this? Have you found ways to improve these symptoms?

[Roger Bliss]

Wow!!! Sounds like you went through pure hell with your covid deal. I also wasn’t aware of the after effects could be so bad. Hope you are back to your ole self soon!!

[Jen Cueva]

Thanks, @wheeldog, it was exactly as you described. I am fortunate that most of the time, I was out and had no clue where I was or what was going on. That is not always positive, but not knowing certain things until later was a blessing in another way.

The side effects after COVID can be different for everyone. But most major hospitals had post-COVID teams set up before I knew about them. I am thankful that my husband’s case was much lighter than mine. But because of his asthma, he seems to struggle a bit more than he did before.

Most important. I am extremely grateful to be here to tell my story. I appreciate that you read it, and it offered a bit of insight for you. I am getting there.

[Jen Cueva]

I wanted to share an article I read yesterday from UCLA. I was busy waiting in waiting rooms, reading between appointments, etc.

It shared how opera singing therapy helps those with long-COVID symptoms. It’s a pretty cool story. You can check it out here.

Thankfully, y’all can’t hear me practicing my Opera singing as I type. Hehe.

[Sharyn Matson]

I am 18 months post Covid & just found out 3 weeks ago that I have PH & CHF. I have been short of breath since having Covid. One of my new diagnoses is post Covid syndrome. I was in the hospital 2 weeks with Covid & on oxygen for 2 months after discharge. I had Covid pneumonia, Diabetic Ketoacidosis, & kidney failure. My pulmonologist said most people post Covid are as good as they will get by 1 year. Not very encouraging

[Colleen Steele]

@scuttlebutt1955 I am so sorry to hear that you have not bounced back well after having Covid. @jenc has struggled with recovery as well. I’m sure she will jump in tomorrow and share her experience with you and how she is doing now.

Were you in kidney failure prior to Covid or did that follow Covid? Jen had kidney disease prior and I’m just wondering if there is any connection to that and recovery challenges.

Please reach out to us any time, even if it is to vent. We are here for you.

[Jen Cueva]

Hi @scuttlebutt1955, yes, Colleen is right. I had a horrific struggle with COVID. I was in the hospital for several weeks. I was told my organs had completely shut down.

This is November-Decemeber 2019. I was in the hospital over Thanksgiving that year without my family and had no clue where I was or who I was.

I had CKD before COVID. My kidney disease is likely related to the multiple diuretics through the years to help relieve my CHF. It’s a catch-22 with these medications.

My biggest issue still is the brain fog and concentration. I continue to suggest neurological symptoms that were not an issue before COVID.

My lungs did deteriorate some post-COVID. But thankfully, I’m pretty much back to my baseline oxygen saturation now.

What do you think has been your most challenging struggle post-COVID?

Thanks, @colleensteele, for sharing and taking me to share some about my experience with COVID.

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