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    • #37831
      Jen Cueva

        For those with CTEPH, access to a specialized CTEPH center is important after a blood clot in the lungs. However, a recent article shares something many of us can agree on.

        “Clinician education about CTEPH is important to ensure optimal care to patients with or at risk for chronic complications of acute PE.”

        The article mentions a few factors that may affect referral to a CTEPH center. This may include;
        ** Lack of a primary care team
        ** Distance from a specialized CTEPH center
        ** Age and other coexisting health conditions

        You can read more on our PH News website here.

        Give it a read, and let’s talk about it. What are some of your takeaways from this article? Were you surprised by these factors?

      • #37865
        Jen Cueva

          @mamabear007 tried posting a response and had some trouble. She asked me to share her thoughts.

          She said, “Thank you for sharing this, @jenc. My son never had a known clotting event before his CTEPH diagnosis, but having a PH specialist who was familiar with CTEPH helped him finally get the right diagnosis, which led to the correct treatment (PTE surgery). I once watched a video presentation by Dr. Madani from UCSD, and he believes every PH patient should have at least one VQ scan before ruling out the possibility of CTEPH. In my son’s case, this was definitely the case. Thank you, again, for sharing this information.”

          Thanks so much, Mamabear, for sharing your thoughts about this article. I agree with Dr. Mandani. I’ve had several VQ scans. I may ask the members who have not yet had one. That would be interesting to know.

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