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    • #31607
      Colleen Steele
      Keymaster

      There is never any pressure to comment or post topics to the forums. However, Jen and I will reach out to people every now and then just to make sure they are doing ok and to let them know we are thinking of them.


      @jimi
      you are on my mind today. It’s been a while PHriend. How are you doing?

      Members, you can reach out and check on people too. Is there a member you have noticed who has been quiet for a while? Just type @(name) and let them know you are thinking of them.

    • #31636
      Jen Cueva
      Keymaster

      Thanks, @colleensteele; I know that we do worry about our forum members. I also wanted to check in on @jenniferbeaty and @texas2018. It has been a while, and I hope that y’all are doing well and keeping busy.

      I’ve also thought of some of our more recent transplant recipients. How are y’all doing at @exjarhead57730 and @bill-jones. How are y’all doing post-transplant?

    • #31640
      Jennifer Beaty
      Participant

      Hi all! Jennifer Beaty checking in. I’m sorry I don’t get to participate much. I have spent  from 2017 to 2020 caring for my mother and trying to get my PAH diagnosis. I was able to get my diagnosis in 2018. But, now that momma has gone, I have somehow become the caregiver to my aunt. She has recently gone into a nursing home and I am tasked with gathering all of the paperwork to submit to Medicaid and taking care of her bills. So, needless to say, I’ve been a little busy. Added to that, my primary care physician kind of messed up my meds and I had a little trouble for a couple of weeks. My pulmonologist is getting them straightened out; but I have an appointment Friday. I’ll try to keep you posted and participate more (but no promises, LOL).

       

      • #31645
        Jen Cueva
        Keymaster

        Oh, @jenniferbeaty, I’m saddened to hear that you’ve lost such a special and important person in your life. As you mourn your mother, please know that our hearts are with you.

        Now adding the care of your aunt, you must be exhausted mentally and physically, and emotionally. That must be difficult for you.

        Ughh, and the med mishap is never a good thing. I hope and pray that your pulmonary team gets you back on track. I am sending you extra positive thoughts, hugs, prayers, and love from Texas.

        We do not want to add to your plate, but please know that we are here to support you anytime. Please take care of yourself and don’t forget to breathe.

      • #31648
        Colleen Steele
        Keymaster

        @jenniferbeaty I’m so sorry to hear about your mom and now your aunt. I can imagine how physically and emotionally challenging it has been advocating for yourself and others. I have deep respect for your efforts.

        It is nice to hear from you but don’t feel pressured to check-in. When you have time and you feel up to it, you can update us. Know that we are here to support you however we can.

      • #31959
        Colleen Steele
        Keymaster

        Hey @jenniferbeaty I sent you a private message. Can you take a look at it when you have the chance? I hope you are doing well. How is your aunt?

    • #31641
      Steve Sallee
      Participant

      Doin’ great. Nothing short of a miracle. I only wish that others on this site could say the same.

      • #31646
        Jen Cueva
        Keymaster

        Hi @exjarhead57730, you do not know how happy your brief update makes my heart happy. Unfortunately, some do not have that chance of new lungs. I am certain that you are putting those new lungs to good use.

        What things have you been doing that you could not do pre-transplant, besides breathing better? Savor each moment and know that we are here for you and look forward to your brief updates when you can.

      • #31647
        Colleen Steele
        Keymaster

        Awesome @exjarhead57730! I’m so happy to hear you are doing well. If any questions or concerns come up for you regarding transplant, remember we have a lung transplant sub-forum here too. Or, like Jen mentioned, just stop in every now and then and let us know what how you are doing and what you have been up to. It’s always nice to hear from you.

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