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Day 3 of #30DaysofPH: Our Journey From Diagnosis to Potts Shunt Surgery
Laura Schonlau is the mother of an 18-year-old with pulmonary hypertension. Her daughter, Dakota, received her diagnosis when she was six, and her journey has had many ups and downs.
In 2018, Dakota suffered a significant decline. Her only options were a heart transplant or the experimental Potts shunt surgery. However, she was still too healthy for a transplant and qualified for the new Potts shunt procedure.
Here’s an excerpt from Laura’s story, “Even though it was extremely painful, Dakota sailed through the surgery and recovery. It took her nearly a year after the surgery to recover fully, and almost two years to see the full benefits. Now, in 2022, she is getting ready to transition to Uptravi and hopefully will be able to remove her IV line completely.”
Read the full story here.
Parents and caregivers, can you relate to Laura’s experience?
Pulmonary Hypertension News’ 30 Days of PH campaign will publish one story per day for PH Awareness Month in November. Follow us on Facebook and Instagram for more stories like this, using the hashtag #30DaysofPH, or read the full series.
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