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Do you attend PH events in your community ?
I realize that we all live in different areas . Often, some of you are not near a big city that offers PH support group meetings and activities.
I am fortunate to live near the Houston area and we have several community events , such as The Woodlands CrawPHish Festival, and a Golf Event each year. I’ve been to the. CrawPHish Festival many times and it was a great time! I’ve also helped with the one and only PHkids4aCure several years ago. I was a huge part in this event , although I was exhausted after , this was a huge event and the PHkuds are always my Superheroes! It was so much fun! It’s awesome to see some of these kids that are teens and young adults!
PHA offers many events all over the world. If you don’t live in an area that has anything, you can always create your own fundraising event and PHA is a huge help. They helped myself and Teresa( Mother of a PH kid) with the PHkids event and we couldn’t have done it without them!
What have you done in your community to raise awareness for PH?
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