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Do You Feel Frustrated When Told No You Can’t?
Last week I had a discussion with my son about the challenge many PH patients have getting friends and family to understand just how sick they are. We talked about the “You don’t look sick” comments that can sometimes make a PH patient feel like they need to push themselves beyond what they can physically handle.
Cullen is most bitter about the opposite problem. He often felt so frustrated when he felt like he could do something but was told he could not. Even thought he was a child he was a strong self-advocate, new his limits and opted out or rested when he needed to. So it was upsetting to him when it was decided for him what he could and could not do.
Do adult PH patients experience this as well? Let’s discuss.
I wrote about this in my column this week. Click here if you would like to read it.
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