We have a new forum member, Lynn, @saksfifth44, who wants to know if anyone has PH and Sarcoidosis. If you have both PH and sarcoidosis, please share your experience with her. I am certain that having both affecting your lungs must be challenging to manage.
For those who want to learn more about sarcoidosis, check this link.
If you have both, were you diagnosed with PH or sarcoidosis first? We want to hear from you.
Yes, thanks for adding that @saksfifth44. My apologies as I did not add that to the post. I am hopeful that anyone on Letairs and Remodulin will share their experiences. As I mentioned, I have only taken Letairs with other medications.
How are you doing today? Did you speak with your doctor about the increased shortness of breath?
They are 95% sure I have sarcoidosis and I also have pulmonary hypertension but I do not know yet if they are related. Whatever you do, do not google sarcoidosis related pulmonary hypertension! The internet will only tell you you’ll die soon.
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