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    • #24674
      Colleen Steele
      Keymaster

      @carol-alexander is wondering if anyone has knowledge or experience with angioplasty for PH. Please share if you do.

    • #24691
      Jen Cueva
      Moderator

      Hi @carol-alexander, can I ask if you have CTEPH due to blood clots? I know that often a balloon angioplasty, which is done similar to a right heart catheter, is done to check for blood clots and open the arteries that become narrowed with PH.

      I have not had this procedure, but I know several CTEPH patients who developed PH due to blood clots, and they did fine with this procedure.

      Is your PH team discussing this? How are you feeling about this and overall?

    • #24696
      Jen Cueva
      Moderator

      Hi @carol-alexander, I just saw this article as I was scrolling the PH News website. Maybe this will be helpful for you. Thinking of you and sending hugs from Texas. Let me know if it helps.

    • #24856

      I had 5 Balloon Pulmonary Angioplasty procedure sessions at UCSD in 2017 for distal clots. I can’t tell you how many clots were opened up, but it was a lot- I think easily 20-30. Those procedures helped me a great deal. I went from needing supplemental oxygen 24/7 to using oxygen at night, at high altitudes, and during strenuous exercise. The BPA procedures were a life saver for me. BPA is a very less invasive procedure than PTE – You are awake for the procedure but are given a sedative – just enough so that you can respond the the doctors, take deep breathes, hold your breath, etc. It was not difficult at all. I spent one night in the hospital after the procedure for observation. If you have in operable CTEPH, ask to be evaluated for BPA. I experienced a remarkable difference after the first 2 sessions, and after the last one. I still take adempas as my pressures are not quite were they should be to go off it. I have been able to return to work full time and enjoy life again. I just have less stamina than I did before – perhaps because I’ve gained 30 pounds too. Hope this helps. MMM

    • #24860
      Brittany Foster
      Keymaster

      @maureen-mccarthy-magill wow it is so great to hear about your positive experience with this. I am sure you have given so many people hope just by reading this part of your story. It is great that they have these interventions as treatment options for those that may qualify. It certainly beats having a major operation done that is invasive. It’s great to see procedures like this and hear good stories about the outcome. I know that many operations that were once open heart surgeries are now being performed via a heart cath and patients end up seeing great improvements.

    • #24867
      Jen Cueva
      Moderator

      @maureen-mccarthy-magill, welcome. Thanks for sharing your positive experience with balloon angioplasty. It sounds like although you still take Adempas, you have improved quite a bit after these procedures. That is awesome to hear. Yes, this is not a major surgery and can benefit those, especially with CTEPH.

      I am sure that @carol-alexander and others will appreciate you sharing this positive experience.

    • #24876
      Colleen Steele
      Keymaster

      Thank you so much @maureen-mccarthy-magill for jumping in right away as a new member and sharing your experience with angioplasty.

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