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    • #30034
      Jen Cueva

      I know that we have discussed iron infusions and several of you required these, like me. Iron deficiency anemia is common among many with PH.

      This article discusses iron replacement therapy does not impact the severity of PH.

      Give it a read and let me know what you think. Do you require iron infusion therapy? If so, do you think it helps your PH symptoms or severity?

    • #30040
      Md. Abul Kalam Azad

      What are the food suppliments for iron deficiency? What are the symptoms of iron deficiency? What is the iron therapy? The answer of the questions are required to improve the health condition. If someone know plz. answer.

    • #30041
      Susi Steppins

      Good morning @azad.
      Here is a link to an article about iron rich foods.

      Make sure you always talk with your doctor before changing anything about your diet or trying to treat something yourself.

      Symptoms of iron deficiency include

      General fatigue
      Pale skin
      Shortness of breath
      Strange cravings to eat items that are not food, such as dirt, ice, or clay
      A tingling or crawling feeling in the legs
      Tongue swelling or soreness
      Cold hands and feet
      Fast or irregular heartbeat
      Brittle nails

      These are not all of the symptoms, just the most common and a lot of these symptoms could be from something else other than iron deficiency.

      If your son is exhibiting these symptoms he really should be seeing a doctor soon.

      I hope you find the answers and the help that you need.

      Take care

    • #30045
      Jen Cueva

      Wow, @s-steppins, what great resources you offer to @azad. My hematologist/oncologist tells me when I start craving ice; my numbers are too low. I was eating Sonic ice for years before I started receiving iron infusions.

      Susi offers another important point, don’t change anything until you check with your son’s doctor. They can do blood work to check his iron levels if he exhibits any of the symptoms.

      Some do OK with oral iron replacement pills. But some, like me, require iron infusions at least every 6 months. Some require it more frequently.

      I hope that you will be prepared to ask the docs if needed between the information that Susi shared and my additions.

      , do you require iron pills or infusions?

    • #30062
      Susi Steppins

      Hi @jenc, not right now.
      I do have a problem with bleeding too much though and am always on the watch for it.
      The meds I take make my gums and nose bleed a lot.
      I hope that in the future this will be more controlled.
      I am still fairly new to this journey and my doctor and I are still trying to figure it all out.

    • #30066
      Jen Cueva

      Oh @s-steppins, I am sorry to hear about your bleeding. Are you on blood thinners, or is this related to your PH meds? Which PH treatments are you on again? My apologies as I have CRS and forget some details, LOL

      We are here to support you along this newer journey. Let us know how we can best help you.

      Your contributions hee have been valuable. Thank you.

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